Palliative and End-of-Life Care- January 2014

General

Asprey, A et al, (2013) Transferring information to

an out-of-hours primary care service for patients

with palliative care needs: an action research

study to improve the use of handover forms.

Primary Health Care Research & Development, 14

(1), pp.7-20. Link to Abstract

 

Bükki, J et al, (2013) Methicillin-resistant

Staphylococcus aureus (MRSA) management in

palliative care units and hospices in Germany: a

nationwide survey on patient isolation policies

and quality of life. Palliative Medicine, 27, pp.84-90.

Link to Abstract

 

Cassel, JB, (2013) The importance of following the

money in the development and sustainability of

palliative care. Palliative Medicine, 27 (2), pp.103-

104 Link to Abstract  Link to Full Text

 

Catania, G et al, (2013) Does quality of life

assessment in palliative care look like a complex

screening program? Health and Quality of  Life

Outcomes, 11 (7). pp. 1-8. Link to Abstract

 Link to Full Text

 

Eastman, P et al, (2013) Palliative care after

attempted suicide in the absence of premorbid

terminal disease: a case series and review of the

literature. Journal of  Pain and Symptom

Management, 45 (2), pp.305-309. Link to Abstract

 

Ersek, M et al, (2013) A nationwide study

comparing end-of-life care for men and women

veterans. Journal of Palliative Medicine, 16 (7),

pp.734-740. Link to Abstract

 

Hui, D et al, (2013) Concepts and definitions for

"supportive care," "best supportive care,"

"palliative care," and "hospice care" in the

published literature, dictionaries, and textbooks.

Support Care Cancer, 21 (3), pp.659-685.

Link to Abstract

 

Krikorian, A et al, (2013) Suffering assessment: a

review of available instruments for use in

palliative care. Journal of  Palliative Medicine, 16 (2),

pp.130-142. Link to Abstract

 

Lavoie, M et al, (2013) The integration of a person-

centered approach in palliative care. Palliative and

Supportive Care, 11 (6), pp.1-12. Link to Abstract

 

Leong Marc-Aurele, K et al, (2013) A Five-Year

Review of Referrals for Perinatal Palliative Care.

Journal of Palliative Medicine, 16 (10), pp.1232-1236.

Link to Abstract

 

Lewis, JM et al, (2013) A social capital framework

for palliative care: supporting health and well-

being for people with life-limiting illness and their

carers through social relations and networks.

Journal of Pain Symptom Management, 45 (1),

 pp.92-103. Link to Abstract

 

Manu, E et al, (2013) Perceptions and attitudes

about hospice and palliative care among

community-dwelling older adults. American

Journal of Hospice and Palliative Care, 30 (2),

pp.153-161. Link to Abstract

 

McIlfatrick, S et al, (2013) Public awareness and

attitudes toward palliative care in Northern

Ireland. BMC Palliative Care, 12 (1), pp.1-7.

Link to Abstract  Link to Full Text

 

McLeod-Sordjan, R, (2013) Human Becoming:

Death Acceptance: Facilitated Communication

With Low-English Proficiency Patients at End of

Life. Journal of Hospice & Palliative Nursing, 15 (7),

pp.390-395 Link to Abstract

 

Newman, R, (2013) Palliative Care Funding

Review: Implications for Family Carers. End of

Life Journal, 3 (4), pp.1-. Link to Abstract

 

Pastor, DK et al, (2013) Uncertainties of the heart:

palliative care and adult heart failure. Home

Healthcare Nurse, 31 (1), pp.29-36. Link to Abstract

 

Pilkington, VD et al, (2013) Series: Concepts in

end-of-life care: palliative care medicine. Journal

of the Mississippi State Medical Association, 54 (3),

pp.81-90. Link to Abstract

 

Read, S, (2013) Palliative care for people with

intellectual disabilities: pitfalls and potential.

Palliative Medicine, 27 (1), pp.3-4. Link to Abstract

 

Reville, B et al, (2013) Education and referral

criteria: impact on oncology referrals to palliative

care. Journal of Palliative Medicine,16 (7), pp.786-

789. Link to Abstract

 

Risse, GB et al, (2013) Shifting Hospital–Hospice

Boundaries: Historical Perspectives on the

Institutional Care of the Dying. American Journal of

Hospice and Palliative Medicine, 30 (4), pp.325-330.

Link to Abstract

 

Sargeant, S et al, (2013) Oral health assessment

and mouth care for children and young people

receiving palliative care. Part one. Nursing

Children and Young People, 25 (2), pp.29-34.

Link to Abstract

 

Scott, R, (2011) Transition and caring for young

adults: are you part of the solution? Progress in

Palliative Care, 19 (6), pp.299-303. Link to Abstract

 

Starks, H et al, (2013) Cost Savings Vary by

Length of Stay for Inpatients Receiving Palliative

Care Consultation Services. Journal of Palliative

Medicine, 16 (10), pp.1215-1220. Link to Abstract

 

Tang, VL et al, (2013) Trends in Hospice Referral

and Length of Stay at a Veterans Hospital Over

the Past Decade. American Journal of Hospice and

Palliative Medicine, 30 (5), pp.432-436

Link to Abstract

 

Taylor, DH et al, (2013) The Effect of Palliative

Care on Patient Functioning. Journal of Palliative

Medicine, 16 (10), pp.1227-1231. Link to Abstract

 

Timm, H et al, (2013) Mapping and comparison of

palliative care nationally and across nations:

Denmark as a case in point. Mortality, 18 (2),

pp.116-129. Link to Abstract

 

Wallace, EM et al, (2013) Referral Patterns of

Nonmalignant Patients to an Irish Specialist

Palliative Medicine Service: A Retrospective

Review. American Journal of Hospice and Palliative

Medicine, 30 (4), pp.399-402 Link to Abstract

 

Cochrane Reviews

Bell, RF et al, (2012) Ketamine as an adjuvant to

opioids for cancer pain. The Cochrane Database of

Systematic reviews, Issue 11, pp.CD003351.

Link to Full Text

 

Author’s Conclusion:  Since the last version of this

review three new studies were identified but excluded

from the review. Current evidence is insufficient to

assess the benefits and harms of ketamine as an

adjuvant to opioids for the relief of cancer pain. More

RCTs are needed.

 

Gomes, B et al, (2013) Effectiveness and cost-

effectiveness of home palliative care services for

adults with advanced illness and their caregivers.

The Cochrane Database of Systematic Reviews,

Issue 6.  Link to Abstract  Link to Full Text

 

Author’s Conclusions: The results provide clear and

reliable evidence that home palliative care increases

the chance of dying at home and reduces symptom

burden in particular for patients with cancer, without

impacting on caregiver grief. This justifies providing

home palliative care for patients who wish to die at

home. More work is needed to study cost-

effectiveness especially for people with non-

malignant conditions, assessing place of death and

appropriate outcomes that are sensitive to change

and valid in these populations, and to compare

different models of home palliative care, in powered

studies.

Maddocks, M et al, (2013) Neuromuscular

electrical stimulation for muscle weakness in

adults with advanced disease. The Cochrane

Database of Systematic Reviews, Issue 1,

pp.CD009419. Link to Abstract  Link to Full Text

 

Author’s Conclusions:  NMES appears an effective means of improving muscle weakness in adults with progressive diseases such as COPD, chronic heart          failure and cancer. Further research is required to clarify its place in clinical practice, by determining the optimal parameters for a NMES programme, the patients most likely to benefit, and its impact on morbidity and service use.

 

Moore, PM et al, (2013) Communication skills

training for healthcare professionals working

with people who have cancer. The Cochrane

Database of Systematic Reviews, Issue 33,

pp.CD003751. Link to Abstract  Link to Full Text

 

Author’s Conclusions: Various CST courses appear

to be effective in improving some types of HCP

communication skills related to information gathering

and supportive skills. We were unable to determine

whether the effects of CST are sustained over time,

whether consolidation sessions are necessary, and

which types of CST programs are most likely to work.

We found no evidence to support a beneficial effect

of CST on HCP 'burnout', patients' mental or physical

health, and patient satisfaction.

 

Xander, C et al, (2013) Pharmacological

interventions for pruritus in adult palliative care

patients. The Cochrane Database of Systematic

Reviews, Issue 6, pp.CD008320. Link to Abstract

Link to Full Text

 

Author’s Conclusions: The findings of this review

indicate that the number of systemic and topical

drugs used for the different subforms of pruritus is

increasing. Different interventions have been shown

to be effective in the treatment of pruritus of different

origins. Nevertheless, an optimal therapy for pruritus

is constrained due to the limited understanding of

crucial itch mediators and receptors in the various

subforms of itch. Ideal antipruritic therapies are still

lacking, especially for palliative care patients. This

systematic review also indicates that there is

insufficient evidence to give any concrete

recommendations regarding treatment of pruritus in

palliative care patients. Due to the very small sample

sizes and poor methodological quality of the majority

of studies that were included, the results of this

review need to be interpreted with caution.

Furthermore, the generalizability is questionable.

Additional studies, and particularly carefully designed

treatment trials, are needed to provide valid evidence

for adequate treatment of pruritus in palliative care

patients.

 

Reports & Statistics

Bryan, L et al (2013) Quality End of Life Care for

All (QELCA©): A National Pilot of Nursing

Workforce Development Initiative – Evaluation

Report. London: St. Christopher’s Hospice

Link to Full Text

 

QELCA©, an end of life care education programme,

was designed by St Christopher’s Hospice, to be

delivered by hospice nurses to nurses working in

acute hospitals. Teams of acute nurse clinical

managers from the same department spend 5 days

based at the hospice in small groups of three or four.

This ensures that all of the clinical nurse managers

from one team or care group share the same or

equivalent experience. Using the hospice setting as a

learning resource, nurses are offered a first-hand

experience of observing and being alongside

specialist nurses as they deliver expert care to

patients and their families at the end of life. In

addition to this practice experience the 5-day

programme combines classroom discussion and

reflection facilitated by experienced specialist

palliative care nurses. The programme then

continues with six months facilitated Action Learning

Sets so that action plans for self, team and

organisation, formulated by the  participants on the

final day of their hospice experience, can be

supported in practice and learning from the

programme consolidated.

 

Henry, C, (2013) New Arrangements for the

National End of Life Care Programme and Recent

Publications. End of Life Journal, 3 (2), pp.1-3.

Link to Abstract   Link to Full Text

 

On 1 April 2013, a new improvement body, NHS

Improving Quality, was established. It is hosted by

the NHS Commissioning Board and brings together

the combined knowledge and experience of a

number of NHS improvement organisations:

 

  •          National End of Life Care Programme
  •          National Cancer Action Team
  •          NHS Diabetes and Kidney Care
  •          NHS Improvement
  •          NHS Institute for Innovation and Improvement.

 

This article outlines the changes and structure of

Palliative Care within the UK.

 

Leadership Alliance for the Care of Dying People

(2013) Engagement with Patients, Families,

Carers and Professionals. Link to Full Text

 

Leadership Alliance for the Care of Dying People

(2014) Care for People in the Last Days and

Hours of Life. Link to Full Text

 

Neuberger, J (2013) More Care Less Pathway: A

Review of the Liverpool Care Pathway.

Link to Full Text

 

There has been a lot of coverage about the Liverpool

Care Pathway (LCP) in the media. This, and many

reports of concerns by patients’ families and some

professionals, led the Minister Norman Lamb to set

up an independent review of the LCP chaired by

Baroness Julia Neuberger. The review recognised

that people died peaceful and dignified deaths where

the LCP was used properly but there were so many

examples where it was not used well that it

recommended phasing out the use of the LCP within

6-12 months.

 

NHS Scotland 2013 Caring for People in the Last

Days and Hours of Life: Interim Guidance.

Edinburgh: NHS Scotland. Link to Full Text

 

It has been announced that the Liverpool Care

Pathway (LCP) will be phased out in Scotland over

the next year. The Scottish Government has

accepted the recommendations from the Living and

Dying Well National Advisory Group. This follows the

Neuberger review of the LCP in England, which

found the framework has not always been used

appropriately. Interim guidance on caring for people

in the last days and hours of life has also been

issued to all Scottish health boards, which will be

followed until a new set of guidelines on best practice

is available in 2014.

 

 

Attitudes & Ethical Issues

Abba, K et al, (2013) Interventions to encourage

discussion of end-of-life preferences between

members of the general population and the

people closest to them - a systematic literature

review. BMC Palliative Care, 12 (1), pp.1-12.

Link to Abstract  Link to Full Text

 

Black, PG et al, (2013) Can a patient designate his

doctor as his proxy decision maker? Pediatrics,

131 (5), pp.986-990. Link to Abstract

 

Grossberg, RI et al, (2013) Direct care staff and

parents'/legal guardians' perspectives on end-of-

life care in a long-term care facility for medically

fragile and intellectually disabled pediatric and

young adult residents. Palliative & Supportive Care,

11 (04), pp.307-314. Link to Abstract

 

Jox, RJ et al, (2013) European perspectives on

ethics and law in end-of-life care. Handbook of

Clinical Neurology, 118, pp.155-165. Link to Abstract

 

McIlfatrick, S et al, (2013) Public awareness and

attitudes toward palliative care in Northern

Ireland. BMC Palliative Care, 12 (1), pp.34.

Link to Abstract  Link to Full Text

 

Radbruch, L et al, (2013) The Lisbon Challenge:

Acknowledging Palliative Care as a Human Right.

Journal of Palliative Medicine, 16 (3), pp. 301-304.

Link to Abstract

 

Rushton, CH et al, (2013) Addressing Moral

Distress: Application of a Framework to Palliative

Care Practice. Journal of Palliative Medicine, 16 (9),

pp.1080-1088. Link to Abstract

 

Rushton, CH et al, (2013) A Framework for

Understanding Moral Distress among Palliative

Care Clinicians. Journal of Palliative Medicine, 16

(9), pp.1074-1079. Link to Abstract

 

Spranzi, M, (2013) The French euthanasia debate:

exception and solidarity. Cambridge Quarterly of

Healthcare Ethics : CQ : the International Journal of

Healthcare Ethics Committees, 22 (3), pp.254-262.

Link to Abstract.

 

Ten Have, H et al, (2013) Palliative Sedation

Versus Euthanasia: An Ethical Assessment.

Journal of Pain and Symptom Management, 47 (1),

pp. 123-136.  Link to Abstract 

 

Zamer, JA et al, (2013) Religious Leaders'

Perspectives of Ethical Concerns at the End of

Life. Journal of Hospice & Palliative Nursing, 15 (7),

pp.396-402 Link to Abstract

 

Bereavement

Allen, JY et al, (2013) Bereavement among

hospice caregivers of cancer patients one year

following loss: predictors of grief, complicated

grief, and symptoms of depression. Journal of

Palliative Medicine, 16 (7), pp.745-751.

Link to Abstract

 

Brownhill, S et al, (2013) A decision model for

community nurses providing bereavement care.

British Journal of Community Nursing, 18 (3), pp.133-

139. Link to Abstract

 

Kim, Y et al, (2013) Finding Benefit in

Bereavement among Family Cancer Caregivers.

Journal of Palliative Medicine, 16 (9), pp.1040-1047.

Link to Abstract

 

McKiernan, F et al, (2013) Psychological Aspects

of Bereavement in Adults: Preliminary

Development of the Bereavement Experiences

Index. Journal of Social Work in End-Of-Life &

Palliative Care, 9 (1), pp.7-26. Link to Abstract

 

Wintermeyer-Pingel, SA et al, (2013) Improving a

grief and loss program: caring for patients,

families, and staff. Omega, 67 (1-2), pp.233-239.

Link to Abstract

 

Carer & Family Support

Doll, KM et al, (2013) Outpatient end of life

discussions shorten hospital admissions in

gynecologic oncology patients. Gynecologic

Oncology, 130 (1), pp.152-155. Link to Abstract

 

Gaab, EM et al, (2013) Primary Caregivers'

Decisions Around Communicating About Death

With Children Involved in Pediatric Palliative Care.

Journal of Hospice & Palliative Nursing, 15 (6),

pp.322-329 Link to Abstract

 

Guerriere, DN et al, (2013) Family caregiver

satisfaction with home-based nursing and

physician care over the palliative care trajectory:

Results from a longitudinal survey questionnaire.

Palliative Medicine, 27 (7), pp. 632-638

Link to Abstract

 

Hottensen, D, (2013) Bereavement: caring for

families and friends after a patient dies. Omega:

Journal of Death and Dying, 67 (1-2), pp.121-126.

Link to Abstract

 

Hudson, P et al, (2013) Reducing the

psychological distress of family caregivers of

home-based palliative care patients: short-term

effects from a randomised controlled trial.

Psychooncology, 22 (9), pp. 1987-1993.

Link to Abstract

 

Mystakidou, K et al, (2013) Caregivers' anxiety and

self-efficacy in palliative care. European Journal of

Cancer Care (Engl), 22, pp.188-195. Link to Abstract

 

Oechsle, K et al, (2013) Anxiety and Depression in

Caregivers of Terminally Ill Cancer Patients:

Impact on Their Perspective of the Patients'

Symptom Burden. Journal of Palliative Medicine, 16

(9), pp.1095-1101. Link to Abstract

 

Oechsle, K et al, (2013) Symptom burden in

palliative care patients: perspectives of patients,

their family caregivers, and their attending

physicians. Support Care Cancer, 21 (7), pp. 1955-

1962 Link to Abstract

 

Communication Skills

Berry, P, (2013) Speaking truth to power: a

challenge for the field of palliative care.

International Journal of Palliative Nursing, 19 (1),

pp.3. Link to Abstract

 

Broom, A et al, (2013) The art of letting go: referral

to palliative care and its discontents. Social

Science and Medicine, 78 , pp.9-16. Link to Abstract

 

Chou, WC et al, (2013) Impact of palliative care

consultative service on disease awareness for

patients with terminal cancer. Support Care

Cancer, 21 (7), pp. 1973-1981  Link to Abstract

 

Jacobsen, J et al, (2013) Misunderstandings about

prognosis: an approach for palliative care

consultants when the patient does not seem to

understand what was said. Journal of Palliative

Medicine, 16, pp.91-95. Link to Abstract

 

Johnson, LA et al, (2013) Does communication

skills training make a difference to patients'

experiences of consultations in oncology and

palliative care services? European Journal of

Cancer Care (Engl), 22, pp.202-209. Link to Abstract

 

Marshall, S et al, (2013) Encouraging/Supporting

Dying Patients to Talk to Their Children. End of

Life Journal, 3 (2), pp.1-4. Link to Full Text

 

Reynolds, K, (2013) Requests for Non-Disclosure

of Poor Prognoses to Patients. Journal of End of

Life, 3 (4), pp.1-7. Link to Full Text

 

Rhondali, W et al, (2013) Medical oncologists'

perception of palliative care programs and the

impact of name change to supportive care on

communication with patients during the referral

process. A qualitative study. Palliative Support

Care, 11 (5),  pp.397-404 Link to Abstract.

 

Community & Out-Patient Care

Blackford, J et al, (2013) Facilitating advance care

planning in community palliative care:

conversation starters across the client journey.

International Journal of Palliative Nursing, 19 (3),

pp.132-139. Link to Abstract

 

Brazil, K et al, (2013) A Comparison of Support

Needs Between Rural and Urban Family

Caregivers Providing Palliative Care. American

Journal of Hospital Palliative Care,  31 (1), pp. 13-19

Link to Abstract

 

Bükki, J et al, (2013) Palliative care needs,

symptoms, and treatment intensity along the

disease trajectory in medical oncology

outpatients: a retrospective chart review. Support

Care in Cancer, 21 (6), pp. 1743-1750

Link to Abstract

 

Carson, K et al, (2013) More than physical

function?  Exploring physiotherapists'

experiences in delivering rehabilitation to

patients requiring palliative care in the

community setting. Journal of Palliative Care, 29

(1), pp.36-44. Link to Abstract

Chapman, MD et al, (2013) The Vulnerable Elders

Survey and its prognostic relationship to survival

in an older community-based palliative

population. BMJ Supportive & Palliative Care, 3 (3),

pp.335-342. Link to Abstract

 

Claessen, SJ et al, (2013) How do GPs identify a

need for palliative care in their patients? An

interview study. BMC Family Practice, 14, pp.42.

Link to Full Text

 

Collis, E et al, (2013) Care of the dying patient in

the community. BMJ, 347, pp.f4085.

Link to Full Text

 

Connell, T et al, (2013) Quality of life of

community-based palliative care clients and their

caregivers. Palliative & Supportive Care, 11 (04),

pp.323-330. Link to Abstract

 

Demiglio, L et al, (2013) A qualitative study

examining the sustainability of shared care in the

delivery of palliative care services in the

community. BMC Palliative Care, 12 (1), pp.32.

Link to Full Text

 

Hall, S et al, (2013) An evaluation of the activity of

a 7-day, nurse-led specialist palliative care

service in an acute district general hospital.

International Journal of Palliative Nursing, 19 (3),

pp.148-150. Link to Abstract

 

Kirkendall, AM et al, (2013) Staff Perspectives on

the Provision of End-of-Life Care in a Community

Residence for Older Adults with Developmental

Disabilities. Journal of Palliative Medicine, 16 (9),

pp.1121-1124. Link to Abstract

 

McNamara, BA et al, (2013) Early admission to

community-based palliative care reduces use of

emergency departments in the ninety days before

death. Journal of Palliative Medicine, 16 (7), pp.

774-779. Link to Abstract

 

Merlin, JS et al, (2013) Chronic pain in the

outpatient palliative care clinic. American Journal

of Hospital Palliative Care, 30, pp.197-203.

Link to Abstract

 

Murphy, A et al, (2013) Health Care Utilization by

Patients Whose Care Is Managed by a Primary

Palliative Care Clinic. Journal of Hospice &

Palliative Nursing, 15 (7), pp.372-379 Link to Abstract

 

Nyatanga, B, (2013) Reforming the NHS: an

opportunity for palliative care in the community?

British Journal of Community Nursing, 18 (5), pp.254.

Link to Abstract

 

Peng, JK et al, (2013) What Influences the

Willingness of Community Physicians to Provide

Palliative Care for Patients with Terminal Cancer?

Evidence from a Nationwide Survey. Japanese

Journal of Clinical Oncology, 43 (3), pp. 278-285

Link to Abstract  Link to Full Text

 

Rhondali, W et al, (2013) Medical oncologists'

perception of palliative care programs and the

impact of name change to supportive care on

communication with patients during the referral

process. A qualitative study. Palliative &

Supportive Care, 11 (05), pp.397-404.

 Link to Abstract

 

Walker, KA et al, (2013) Effectiveness of

Integration of Palliative Medicine Specialist

Services into the Intensive Care Unit of a

Community Teaching Hospital. Journal of Palliative

Medicine, 16 (10), pp.1237-1241. Link to Abstract

 

Wiese, CH et al, (2013) International

recommendations for outpatient palliative care

and prehospital palliative emergencies - a

prospective questionnaire-based investigation.

BMC Palliative Care, 12, pp.10.  Link to Abstract

Link to Full Text

 

 

Complementary Therapy

Ducloux, D et al, (2013) Promoting Sleep for

Hospitalized Patients With Advanced Cancer With

Relaxation Therapy: Experience of a Randomized

Study. American Journal of Hospice and Palliative

Medicine, 30 (6), pp.536-540. Link to Abstract

 

Engelman, SR, (2013) Palliative care and use of

animal-assisted therapy. Omega, 67 (1-2), pp.63-

67. Link to Full Text

 

Garcia, MK et al, (2013) Systematic review of

acupuncture in cancer care: a synthesis of the

evidence. Journal of Clinical Oncology: Official

Journal of the American Society of Clinical Oncology,

31 (7), pp.952-960. Link to Abstract

 

Mitchinson, A et al, (2014) Integrating Massage

Therapy Within the Palliative Care of Veterans

With Advanced Illnesses: An Outcome Study.

American Journal of Hospital Palliative Care, 31 (1),

pp. 6-12 Link to Abstract

 

Molassiotis, A et al, (2012) Acupuncture for cancer-

related fatigue in patients with breast cancer: a

pragmatic randomized controlled trial. Journal of

Clinical Oncology: Official Journal of the American

Society of Clinical Oncology, 30 (36), pp.4470-4476.

Link to Abstract

 

Thompson, A et al, (2013) Feasibility Study to

Implement Nurse-Delivered Massage for Pain

Management. Journal of Hospice & Palliative

Nursing, 15 (7), pp.403-409 Link to Abstract

 

Vandergrift, A, (2013) Use of complementary

therapies in hospice and palliative care. Omega,

67 (1-2), pp.227-232. Link to Abstract

 

Viliotti, M, (2013) Complementary Therapy:

Comfort for Those in Need of Palliative Care. End

of Life Journal, 3 (4), pp.1-4. Link to Full Text

 

Confusion & Dementia

Boogaard, JA et al, (2013) Feedback on end-of-life

care in dementia: the study protocol of the

FOLlow-up project. BMC Palliative Care, 12 (1),

pp.29. Link to Full Text

 

Coggins, CC et al, (2013) Assessment and

management of delirium: A focus on hepatic

encephalopathy. Palliative & Supportive Care, 11

(4), pp.341-352. Link to Abstract

 

Davies, J et al, (2013) Advance Decisions to

Refuse Treatment in Cases of Dementia. End of

Life Journal, 3 (2), pp. 1-5 Link to Full Text

 

Dempsey, D, (2013) Advance care planning for

people with dementia: benefits and challenges.

International Journal of  Palliative Nursing, 19 (5),

pp.227-234. Link to Abstract

 

Gonçalves, F et al, (2013) Variation in the

incidence of agitated delirium during the day in a

palliative care unit: a preliminary report. American

Journal of Hospice and Palliative Medicine, 30 (2),

pp.111-113. Link to Abstract

 

Iliffe, S et al, (2013) Modelling the landscape of

palliative care for people with dementia: a

European mixed methods study. BMC Palliative

Care, 12 (1), pp.30. Link to Full Text

 

Johansson, ÅK et al, (2013) Grief Among

Demented Elderly Individuals: A Pilot Study.

American Journal of Hospice and Palliative Medicine,

30 (5), pp.445-449. Link to Abstract

 

Jones, BW, (2013) Critically Appraised Topic: The

Effect of Hospice Care in Patients With Dementia.

American Journal of Hospice and Palliative Medicine,

30 (6), pp.590-593. Link to Abstract

 

Kostrzewa, AS, (2013) Facing dementia:

integrating palliation into all aspects of care.

Creative Nursing, 19 (1), pp.12-15. Link to Abstract

 

Pace, V et al, (2013) Palliative Care and Advanced

Dementia: The Croydon Project. End of Life

Journal, 3 (4), pp.1-5. Link to Full Text

 

Roberts, D et al, (2013) A palliative approach to

care of residents with dementia. Nursing Older

People, 25 (2), pp.32-36. Link to Abstract

 

Szarpa, KL et al, (2013) The Prodrome to Delirium:

A Grounded Theory Study. Journal of Hospice &

Palliative Nursing, 15 (6), pp.332-337 Link to Abstract

 

Yeaman, PA et al, (2013) Providing Quality

Palliative Care in End-Stage Alzheimer Disease.

American Journal of Hospice and Palliative Medicine,

30 (5), pp.499-502. Link to Abstract

 

Yeaman, PA et al, (2013) Relationship of Physical

and Functional Independence and Perceived

Quality of Life of Veteran Patients With Alzheimer

Disease. American Journal of Hospice and Palliative

Medicine, 30 (5), pp.462-466. Link to Abstract

 

Elderly Care

Ersek, M et al, (2013) Geriatric Palliative Care in

Long-Term Care Settings with a Focus on

Nursing Homes. Journal of Palliative Medicine, 16

(10), pp.1180-1187. Link to Abstract

 

Gardiner, C et al, (2013) Palliative care for frail

older people: A cross-sectional survey of

patients at two hospitals in England. Progress in

Palliative Care, 21 (5), pp.272-277. Link to Abstract

 

Ladha, A et al, (2013) Care of the frail elder: the

nexus of geriatrics and palliative care. Minnesota

medicine, 96 (4), pp.39-42. Link to Abstract

 

Lillie, AK et al, (2013) Musculoskeletal pain in

older adults at the end-of-life: a systematic

search and critical review of the literature with

priorities for future research. BMC Palliative Care,

12 (1), pp.27. Link to Full Text

 

Muller-Mundt, G et al, (2013) End of life care for

frail older patients in family practice (ELFOP)—

protocol of a longitudinal qualitative study on

needs, appropriateness and utilisation of

services. BMC Family Practice, 14, pp.52.

Link to Full Text

 

Vosit-Steller, J et al, (2013) Perception of Dignity in

Older People and at the End of Life. End of Life

Journal, 3 (2) Link to Full Text

 

 

Emergencies in Palliative Care

Kjørstad, OJ et al, (2013) Cardiopulmonary

resuscitation in palliative care cancer patients.

Tidsskrift for Den Norske Laegeforening, 133 (4),

pp.417-421. Link to Full Text

 

Lamba, S et al, (2013) Palliative care provision in

the emergency department: barriers reported by

emergency physicians. Journal of Palliative

Medicine, 16 (2), pp.143-147. Link to Abstract

 

Lawrenson, R et al, (2013) Palliative care patients'

use of emergency departments. The New Zealand

Medical Journal, 126 (1372), pp.80-88.

Link to Full Text

 

Quest, T et al, (2013) Demonstrations of clinical

initiatives to improve palliative care in the

emergency department: a report from the IPAL-

EM Initiative. Annals of Emergency Medicine, 61 (6),

pp.661-667. Link to Abstract

 

Shreves, A et al, (2013) Emergency management

of dyspnea in dying patients. Emergency Medicine

Practice, 15 (5), pp.1-19 Link to Abstract

 

 

Health Professionals

Brummen, B et al, (2013) Working in a medicalised

world: the experiences of palliative care nurse

specialists and midwives. International Journal of  

Palliative Nursing, 19, pp.85-91. Link to Abstract

 

Corcoran, AM et al, (2013) Pilot test of a three-

station palliative care observed structured

clinical examination for multidisciplinary trainees.

The Journal of Nursing Education, 52 (5), pp.294-298.

Link to Abstract

 

Dickinson, GE, (2013) End-of-Life and Palliative

care Education in US Pharmacy Schools.

American Journal of Hospice and Palliative Medicine,

30 (6), pp.532-535. Link to Abstract

 

Dietz, I et al, (2013) Errors in palliative care: kinds,

causes, and consequences: a pilot survey of

experiences and attitudes of palliative care

professionals. Journal of  Palliative Medicine, 16 (1),

pp.74-81. Link to Abstract

 

Dimitrov, N, (2013) Ethical tools for physician

assistant students: implementation of palliative

care training in an ethical framework. The Journal

of Physician Assistant Education: the Official Journal

of the Physician Assistant Education Association, 24

(1), pp.50-53. Link to Full Text

 

Foo, WT et al, (2013) Factors Considered in End-

of-Life Care Decision Making by Health Care

Professionals. American Journal of Hospice and

Palliative Medicine, 30 (4), pp.354-358.

Link to Abstract

 

Horne-Thompson, A et al, (2011) The benefits of

interdisciplinary practice in a palliative care

setting: a music therapy and physiotherapy pilot

project. Progress in Palliative Care, 19 (6), pp.304-

308. Link to Abstract

 

Mougalian, SS et al, (2013) Palliative care training

and associations with burnout in oncology

fellows. The Journal of Supportive Oncology, 11 (2),

pp.95-102. Link to Abstract

 

Oya, H et al, (2013) Mandatory palliative care

education for surgical residents: initial focus on

teaching pain management. Japanese Journal

Clinical Oncology, 43, pp.170-175. Link to Full Text

 

Pelayo-Alvarez, M et al, (2013) Clinical

Effectiveness of Online Training in Palliative Care

of Primary Care Physicians. Journal of Palliative

Medicine, 16 (10), pp.1188-1196. Link to Abstract

 

Raunkiaer, M et al, (2013) Interventions

concerning competence building in community

palliative care services - a literature review.

 

Scandinavian Journal Caring Sciences, 27 (4), pp.

804-819 Link to Abstract

Sanchez-Reilly, S et al, (2013) Caring for oneself to

care for others: physicians and their self-care.

The Journal of Supportive Oncology, 11 (2), pp.75-81.

Link to Full Text

 

Schulz, C et al, (2013) Evaluating an evidence-

based curriculum in undergraduate palliative care

education: piloting a phase II exploratory trial for

a complex intervention. BMC Medical Education,

13, pp.1. Link to Full Text

 

Snyder, S et al, (2013) Physician Knowledge,

Attitude, and Experience With Advance Care

Planning, Palliative Care, and Hospice: Results of

a Primary Care Survey. American Journal of

Hospice and Palliative Medicine, 30 (5), pp.419-424.

Link to Abstract

 

Supiano, KP, (2013) Weaving interdisciplinary and

discipline-specific content into palliative care

education: one successful model for teaching

end-of-life care. Omega, 67 (1-2), pp.201-206.

Link to Abstract

 

Terashita-Tan, S, (2013) Striving for wholeness

and transdisciplinary teamwork at a pacific

basin's pain and palliative care department.

Omega, 67 (1-2), pp.207-212. Link to Abstract

 

Weisenfluh, SM et al, (2013) Professional and

Educational Needs of Hospice and Palliative Care

Social Workers. Journal of Social Work in End-Of-

Life & Palliative Care, 9 (1), pp.58-73.

Link to Abstract

 

White, KR et al, (2013) Voices From the Bedside:

Palliative Nurses' Perceptions of Current

Practices and Challenges. Journal of Hospice &

Palliative Nursing, 15 (6), pp.360-365

Link to Abstract

 

Hospice at Home

Alexander, T et al, (2013) Pre-Discharge Home

Visits for Terminally Ill Hospital Patients. End of

Life Journal, 3 (4), pp.1-4. Link to Full Text

 

Bergdahl, E et al, (2013) Co-creating possibilities

for patients in palliative care to reach vital goals –

a multiple case study of home-care nursing

encounters. Nursing Inquiry, 20 (4), pp. 341-351

Link to Abstract

Cobbe, S et al, (2013) A profile of hospice-at-home

physiotherapy for community-dwelling palliative

care patients. International Journal of  Palliative

Nursing, 19 (1), pp.39-45. Link to Abstract

 

Ewing, G et al, (2013) The Carer Support Needs

Assessment Tool (CSNAT) for Use in Palliative

and End-of-life Care at Home: A Validation Study.

Journal of Pain and Symptom Management, 46 (3),

pp.395-405. Link to Abstract

 

Flanagan-Kaminsky, D, (2013) Intentional

anticipatory mourning, caregiver and

bereavement support program for terminally ill

veterans, their families & caregivers in the VA

Contract Home Hospice Program. Omega, 67 (1-2),

pp.69-77. Link to Abstract

 

Gill, A et al, (2013) Predictors of home death in

palliative care patients: a critical literature review.

Journal of Palliative Care, 29 (2), pp.113-118.

Link to Abstract  Link to Full Text

 

Jang, RW et al, (2013) Impact of an Oncology

Palliative Care Clinic on Access to Home Care

Services. American Journal of Hospice and Palliative

Medicine, 30 (5), pp.425-431. Link to Abstract

 

Luckett, T et al, (2013) Do community specialist

palliative care services that provide home

nursing increase rates of home death for people

with life-limiting illnesses? A systematic review

and meta-analysis of comparative studies. Journal

of Pain and Symptom Management, 45 (2), pp.279-

297. Link to Abstract

 

Lynch, S, (2013) Hospice and palliative care

access issues in rural areas. American Journal of

Hospice Palliative Care, 30 (2), pp.172-177.

Link to Abstract

 

Ornstein, K et al, (2013) Reduction in Symptoms

for Homebound Patients Receiving Home-Based

Primary and Palliative Care. Journal of Palliative

Medicine, 16 (9), pp.1048-1054. Link to Abstract

 

 

Hospital Based Palliative Care

Albanese, TH et al, (2013) Assessing the Financial

Impact of an Inpatient Acute Palliative Care Unit

in a Tertiary Care Teaching Hospital. Journal of

Palliative Medicine, 16 (3), pp. 289-294.

Link to Abstract

 

Al-Kindi, SG et al, (2013) Pattern of hospitalization

of patients with cancer in an acute palliative care

setting: Qatar's experience. American Journal of

Hospice Palliative Care, 30, pp.25-28.

Link to Abstract

 

Cheng, SY et al, (2013) Evaluation of inpatient

multidisciplinary palliative care unit on terminally

ill cancer patients from providers' perspectives: a

propensity score analysis. Japanese Journal of

Clinical Oncology, 43 (2), pp.161-169.

Link to Full Text

 

Chou, WC et al, (2013) Comparing end-of-life care

for hospitalized patients with chronic obstructive

pulmonary disease and lung cancer in Taiwan.

Journal of Palliative Care, 29 (1), pp.29-35.

Link to Abstract

 

Daly, D et al, (2013) Building a transdisciplinary

approach to palliative care in an acute care

setting. Omega, 67 (1-2), pp.43-51. Link to Abstract

 

Conclaves, F, (2013) Initial Assessment of

Patients Without Cognitive Failure Admitted in

Palliative Care. American Journal of Hospice

Palliative Care, 31 (1), pp. 33-37 Link to Abstract

 

Got, M et al, (2013) Palliative care need and

management in the acute hospital setting: a

census of one New Zealand Hospital. BMC

Palliative Care, 12, pp.15. Link to Full Text

 

Got, M et al, (2013) The nature of, and reasons for,

'inappropriate' hospitalisations among patients

with palliative care needs: A qualitative

exploration of the views of generalist palliative

care providers. Palliative Medicine, 27 (8), pp. 747-

756   Link to Abstract

 

Got, M et al, (2013) What is the extent of

potentially avoidable admissions amongst

hospital in-patients with palliative care needs?

BMC Palliative Care, 12, pp.9. Link to Full Text

 

Roberts, D et al, (2013) Evaluating palliative care

ward staffing using bed occupancy, patient

dependency, staff activity, service quality and

cost data. Palliative Medicine, 27 (2), pp.123-130.

Link to Abstract

 

Wit Kamp, FE et al, (2013) Improving the quality of

palliative and terminal care in the hospital by a

network of palliative care nurse champions: the

study protocol of the Pal Tec-H project. BMC

Health Services Research, 13, pp.115.

Link to Full Text

 

Nutrition

Canfield, KN et al, (2013) Forgoing artificial

nutrition and hydration: what to make of parents'

views. Pediatrics, 131 (5), pp.993-994.

Link to Abstract

 

 

 

 

 

Arrival, Y et al, (2013) A national observational

study of the prevalence and use of enteral tube

feeding, parenteral nutrition and intravenous

glucose in cancer patients enrolled in specialized

palliative care. Nutrients, 5 (1), pp.267-282.

Link to Full Text

 

Rapport, A et al, (2013) Parental perceptions of

forgoing artificial nutrition and hydration during

end-of-life care. Pediatrics, 131 (5), pp.861-869.

Link to Abstract

 

Stiles, E, (2013) Providing artificial nutrition and

hydration in palliative care. Nursing Standard, 27

(20), pp.35-42. Link to Abstract

 

Wallengren, O et al, (2013) Dietary energy density,

inflammation and energy balance in palliative

care cancer patients. Clinical Nutrition, 32 (1),

pp.88-92. Link to Abstract

 

 

Paediatric Palliative Care

Bergstraesser, E, (2013) Pediatric palliative care-

when quality of life becomes the main focus of

treatment. European Journal of Pediatrics, 172 (2),

pp.139-150. Link to Abstract

 

Bergstraesser, E et al, (2013) The development of

an instrument that can identify children with

palliative care needs: the Paediatric Palliative

Screening Scale (PaPaS Scale): a qualitative

study approach. BMC Palliative Care, 12 (1), pp.20.

Link to Abstract  Link to Full Text

 

Bergstraesser, E et al, (2013) The needs of

professionals in the palliative care of children

and adolescents. European Journal of Pediatrics,

172 (1), pp.111-118. Link to Abstract

 

Bradford, N et al, (2013) The case for home based

telehealth in pediatric palliative care: a

systematic review. BMC Palliative Care, 12, pp.4.

Link to Abstract Link to Full Text

 

Chang, E et al, (2013) Characteristics influencing

location of death for children with life-limiting

illness. Archives of Disease in Childhood, 98 (6),

pp.419-424. Link to Abstract  Link to Full Text

 

Chavoshi, N et al, (2013) Resource Utilization

among Individuals Dying of Pediatric Life-

Threatening Diseases. Journal of Palliative

Medicine, 16 (10), pp.1210-1214. Link to Abstract

 

Couch, E et al, (2013) Oral health perceptions of

paediatric palliative care nursing staff.

International Journal of  Palliative Nursing, 19 (1),

pp.9-15. Link to Abstract

 

 

 

 

Downing, JD et al, (2013) Developing children's

palliative care in Africa through beacon centres:

lessons learnt. BMC Palliative Care, 12, pp.8.

Link to Abstract  Link to Full Text

 

Frey, E et al, (2013) Transitional care of a

childhood cancer survivor to adult services:

facilitating the process of individual access to

different models. Current Opinion in Supportive and

Palliative Care, 7 (3), pp.309-313 Link to Abstract

 

Gupta, V et al, (2013) "That must be so hard"-

Examining the impact of children's palliative care

services on the psychological well-being of

parents. Clinical Child Psychology Psychiatry, 18 (1),

pp.91-99. Link to Abstract

 

Hain, R et al, (2013) Paediatric palliative care:

development and pilot study of a 'Directory' of

life-limiting conditions. BMC Palliative Care, 12 (1),

pp.43. Link to Abstract  Link to Full Text

 

Hex, N et al, (2013) Cost-effectiveness of follow-

up services for childhood cancer survivors

outside the cancer setting. Current Opinion in

Supportive and Palliative Care, 7 (3), pp.314-317

Link to Abstract

 

Keele, L et al, (2013) Differences in characteristics

of dying children who receive and do not receive

palliative care. Pediatrics, 132 (1), pp.72-78.

Link to Abstract

 

Martin, M, (2013) Missed opportunities: a case

study of barriers to the delivery of palliative care

on neonatal intensive care units. International

Journal of Palliative Nursing, 19 (5), pp.251-256.

Link to Abstract

 

Noyes, J et al, (2013) Evidence-based planning

and costing palliative care services for children:

novel multi-method epidemiological and

economic exemplar. BMC Palliative Care, 12 (1),

pp.18. Link to Abstract  Link to Full Text

 

O'Shea, ER et al, (2013) Understanding pediatric

palliative care: what it is and what it should be.

Journal of Pediatric Oncology Nursing, 30 (1), pp.34-

44. Link to Abstract

 

Schmidt, P et al, (2013) Did Increased Availability

of Pediatric Palliative Care Lead to Improved

Palliative Care Outcomes in Children with

Cancer? Journal of Palliative Medicine, 16 (9),

pp.1034-1039. Link to Abstract

 

Skinner, R et al, (2013) Developing international

consensus for late effects screening and

guidance. Current Opinion in Supportive and

Palliative Care, 7 (3), pp.303-308 Link to Abstract

 

Thompson, LA et al, (2013) Chronic Pain

Management as a Barrier to Pediatric Palliative

Care. American Journal of Hospice and Palliative

Care, 30 (8), pp. 764-767 Link to Abstract

 

Wager, J et al, (2013) International

multiprofessional course in pediatric palliative

care: benefits and challenges. Journal of Palliative

Medicine, 16, pp.96-99. Link to Abstract

 

Wiener, L et al, (2013) Cultural and religious

considerations in pediatric palliative care.

Palliative Support Care, 11 (1), pp.47-67.

Link to Abstract  Link to Full Text

 

Wray, J et al, (2013) Exploring perceptions of

psychological services in a children's hospice in

the United Kingdom. Palliative & Supportive Care,

11 (05), pp.373-382. Link to Abstract

 

Palliative Care: Non-Oncology

Harding, R et al, (2013) Can palliative care

integrated within HIV outpatient settings improve

pain and symptom control in a low-income

country? A prospective, longitudinal, controlled

intervention evaluation. AIDS Care, 25 (7),

pp.795-804. Link to Abstract  Link to Full Text

 

Horton, R et al, (2013) Implementing a palliative

care trial in advanced COPD: a feasibility

assessment (the COPD IMPACT study). Journal of

Palliative Medicine, 16, pp.67-73.  Link to Abstract

Link to Full Text

 

Hsu, N-C et al, (2013) Noncancer Palliative Care:

The Lost Pieces in an Acute Care Setting in

Taiwan. American Journal of Hospice and Palliative

Medicine, 30 (4), pp.334-338. Link to Abstract

 

Huang, YT, (2013) Challenges and responses in

providing palliative care for people living with

HIV/AIDS. International Journal of Palliative Nursing,

19 (5), pp.218, 220-215. Link to Abstract

 

Hussain, J et al, (2013) End-of-life care in

neurodegenerative conditions: outcomes of a

specialist palliative neurology service.

International Journal of Palliative Nursing, 19 (4),

pp.162-169. Link to Abstract

 

Shah, AB et al, (2013) Failing the failing heart: a

review of palliative care in heart failure. Reviews

in Cardiovascular Medicine, 14 (1), pp.41-48.

Link to Abstract

 

Walker, RW, (2013) Palliative care and end-of-life

planning in Parkinson's disease. Journal of Neural

Transmission, 120 (4), pp. 635-638 

Link to Abstract

 

Wool, C, (2013) Clinician confidence and comfort

in providing perinatal palliative care. Journal of

Obstetric, Gynecologic & Neonatal Nursing, 42 (1),

pp.48-58. Link to Abstract  Link to Full Text

 

 

Palliative Care: Oncology

Antonuzzo, A et al, (2013) Supportive care and not

only palliative care in the route of cancer patients.

Supportive Care in Cancer, 21 (3), pp.657-658.

No Abstract Available

 

Bakitas, M et al, (2013) Oncologists' perspectives

on concurrent palliative care in a National Cancer

Institute-designated comprehensive cancer

center. Palliative & Supportive Care, 11 (05), pp.415-

423. Link to Full Text

 

Fahy, BN, (2013) Palliative care for the surgical

oncologist: embracing the palliativist within.

Surgery, 153 (1), pp.1-3. No Abstract Available

 

Ford, DW et al, (2013) Palliative and end-of-life

care in lung cancer: Diagnosis and management

of lung cancer, 3rd ed: American College of

Chest Physicians evidence-based clinical

practice guidelines. Chest, 143 (5 Suppl),

pp.e498S-512S. Link to Abstract

 

Greer, JA et al, (2013) Early integration of

palliative care services with standard oncology

care for patients with advanced cancer. CA: a

cancer journal for clinicians, 63 (5), pp.349-363.

Link to Abstract

 

Hydeman, J, (2013) Improving the integration of

palliative care in a comprehensive oncology

center: increasing primary care referrals to

palliative care. Omega, 67 (1-2), pp.127-134.

Link to Abstract

 

Irwin, KE et al, (2013) Early palliative care and

metastatic non-small cell lung cancer: Potential

mechanisms of prolonged survival. Chronic

Respiratory Disease, 10 (1), pp.35-47.

Link to Abstract

 

Jang, DW et al, (2013) Palliative surgery for head

and neck cancer with extensive skin involvement.

The Laryngoscope, 123 (5), pp.1173-1177.

Link to Abstract

 

Johnsen, A et al, (2013) A randomised, multicentre

clinical trial of specialised palliative care plus

standard treatment versus standard treatment

alone for cancer patients with palliative care

needs: the Danish palliative care trial (DanPaCT)

protocol. BMC Palliative Care, 12 (1), pp.37.

Link to Full Text

 

Kaasa, S, (2013) Integration of general oncology

and palliative care. The Lancet Oncology, 14 (7),

pp.571-572. Link to Abstract

Kao, C-Y et al, (2014) Effects of the hospital-based

palliative care team on the care for cancer

patients: An evaluation study. International Journal

of Nursing Studies, 51 (2), pp.226-235.

Link to Abstract

 

Kwon, JH et al, (2013) Clinical characteristics of

cancer patients referred early to supportive and

palliative care. Journal of  Palliative Medicine, 16,

pp.148-155. Link to Abstract

 

Leadbeater, M, (2013) The role of a community

palliative care specialist nurse team in caring for

people with metastatic breast cancer. International

Journal of Palliative Nursing, 19 (2), pp.93-97.

Link to Abstract

 

López-Saca, JM et al, (2013) Hypomagnesemia as

a possible explanation behind episodes of severe

pain in cancer patients receiving palliative care.

Support Care Cancer, 21 (2), pp.649-652.

Link to Abstract

 

McGrath, P, (2013) End-of-Life Care in

Hematology: Update From Australia. Journal of

Social Work in End-Of-Life & Palliative Care, 9 (1),

pp.96-110. Link to Abstract

 

Morita, T et al, (2013) Effects of a programme of

interventions on regional comprehensive

palliative care for patients with cancer: a mixed-

methods study. The Lancet Oncology, 14 (7),

pp.638-646. Link to Abstract

 

Nakano, K et al, (2013) Living with pleasure in

daily life at the end of life: Recommended care

strategy for cancer patients from the perspective

of physicians and nurses. Palliative & Supportive

Care, 11 (05), pp.405-413. Link to Abstract

 

Otis-Green, S et al, (2013) Palliative care

opportunities for women with advanced ovarian

cancer associated with intraperitoneal

chemotherapy. Journal of Palliative Medicine, 16 (1),

pp.44-53. Link to Abstract

 

Porzio, G et al, (2013) Integrating oncology and

palliative home care in Italy: the experience of the

"L'Aquila per la Vita" Home Care Unit. Tumori, 99

(2), pp.225-228. Link to Abstract

 

Rocque, GB et al, (2013) Palliative care reduces

morbidity and mortality in cancer. Nature Review

Clinical Oncology, 10 (2), pp.80-89. Link to Abstract

 

Singh, G et al, (2013) Evaluation of the role and

cost-effectiveness of end-of-life orthopaedic

interventions in cancer patients with skeletal

metastases to the hip. Journal of Palliative Care, 29

(2), pp.83-90. Link to Abstract

 

Torgerson, S et al, (2013) Supportive care of the

patient with advanced pancreatic cancer.

Oncology (Williston Park, N.Y.), 27 (3), pp.183-190.

Link to Abstract

Waldman, E et al, (2013) Palliative care for

children with cancer. Nature Review Clinical

Oncology, 10 (2), pp.100-107. Link to Abstract

 

Yoong, J et al, (2013) Early Palliative Care in

Advanced Lung Cancer: A Qualitative Study.

JAMA Internal Medicine, 173 (4) pp.1-8.

Link to Abstract

 

 

Palliative Care in ITU

Grossman, S, (2013) Development of the Palliative

Care of Dying Critically Ill Patients Algorithm:

Implications for Critical Care Nurses. Journal of

Hospice & Palliative Nursing, 15 (6), pp.355-359

Link to Abstract

 

Ryan, L et al, (2013) Death and Dying in Intensive

Care: Emotional Labour of Nurses. End of Life

Journal, 3 (2), pp.1-9. Link to Full Text

 

This article explores the emotional labour of ICU

nurses when caring for dying patients and their

relatives/loved ones, including the difficulty nurses

experience when managing the transition from

curative care to EoLC. It will discuss the emotional

and grief reactions experienced by ICU nurses,

before considering the education and support nurses

need in order to prepare them better to provide

high-quality EoLC.

 

Truog, RD, (2013) Palliative care in the ICU: lots of

questions, few answers*. Critical Care Medicine, 41

(6), pp.1568-1569. Link to Abstract

 

 

Pathways & Models of Care

Arie, S, (2013) Inquiry launched into newspaper

story about babies on "death pathway". BMJ, 346

(7897), f1273 pp. Link to Full Text

 

Bischoff, KE et al, (2013) Advance care planning

and the quality of end-of-life care in older adults.

Journal of the American Geriatrics Society, 61 (2),

pp.209-214. Link to Abstract

 

Chan, CWH et al (2014) The evaluation of a

palliative care programme for people suffering

from life-limiting diseases. Journal of Clinical

Nursing, 23 (1&2), pp. 113-123. Link to Abstract

Link to Full Text

 

Chinthapalli, K, (2013) The Liverpool Care

Pathway: what do specialists think? BMJ, 346

(7897), pp.1-4. f1184 Link to Full Text

 

Crawford, GB et al, (2013) A patient-centred model

of care incorporating a palliative approach: A

framework to meet the needs of people with

advanced COPD? Progress in Palliative Care, 21 (5),

pp.286-294. Link to Abstract

Kumar, S, (2013) Models of delivering palliative

and end-of-life care in India. Current Opinion in

Supportive and Palliative Care, 7 (2), pp.216-222

Link to Abstract

 

Mayland, CR et al, (2013) Does the 'Liverpool Care

Pathway' facilitate an improvement in quality of

care for dying cancer patients? British Journal of

Cancer, 108 (10), pp.1942-1948. Link to Abstract

 

Morrison, RS, (2013) Models of palliative care

delivery in the United States. Current Opinion in

Supportive and Palliative Care, 7 (2), pp.201-206

Link to Abstract

 

Mwangi-Powell, FN et al, (2013) Models of

delivering palliative and end-of-life care in sub-

Saharan Africa: a narrative review of the evidence.

Current Opinion in Supportive and Palliative Care, 7

(2), pp.223-228 Link to Abstract

 

Parker, MJ, (2013) We need an alternative to the

Liverpool care pathway for patients who might

recover. BMJ, 346, pp.f3702. Link to Full Text

 

Rhee, JJ et al, (2013) Why Are Advance Care

Planning Decisions Not Implemented? Insights

from Interviews with Australian General

Practitioners. Journal of Palliative Medicine, 16 (10),

pp.1197-1204. Link to Abstract

 

Riley, J et al, (2013) Coordinate My Care: A clinical

approach underpinned by an electronic solution.

Progress in Palliative Care, 21 (4), pp.214-219.

Link to Abstract

 

Vermandere, M et al, (2013) Implementation of the

ars moriendi model in palliative home care: A

pilot study. Progress in Palliative Care, 21 (5),

pp.278-285. Link to Abstract

 

Watts, T, (2013) The media critique of the

Liverpool Care Pathway: some implications for

nursing education. International Journal of Palliative

Nursing, 19 (6), pp.275-280. Link to Abstract

 

Wee, B, (2013) Models of delivering palliative and

end-of-life care in the UK. Current Opinion in

Supportive and Palliative Care, 7 (2), pp.195-200

Link to Abstract

The development of palliative and end-of-life care in the UK has been shaped by history and circumstances within and outside palliative care itself. The main focus of this review is to describe adult palliative care services in England, although much of the historical developments apply across the whole of the UK, and some of the later developments affect children's services as well.

 

Principles of Drug Use

Clemens, KE et al, (2013) Pharmacological

treatment of constipation in palliative care.

Current Opinion in Supportive and Palliative Care, 7

(2), pp.183-191 Link to Abstract

 

Hawley, P et al, (2013) Continuing methadone for

pain in palliative care. Pain Research &

Management: the Journal of the Canadian Pain

Society = journal de la societe canadienne pour le

traitement de la douleur, 18 (2), pp.83-86.

Link to Abstract

 

Landon, AS, (2013) Changing opioid legislation to

improve specialist palliative care in Romania.

Progress in Palliative Care, 21 (4), pp.220-223.

Link to Abstract

 

Maurer, MA et al, (2013) Examining Influences on

the Availability of and Access to Opioids for Pain

Management and Palliative Care. Journal of Pain

and Palliative Care Pharmacotherapy, 27 (3), pp.255-

260. Link to Abstract

 

Prommer, E, (2013) Anticholinergics in Palliative

Medicine: An Update. American Journal of Hospice

and Palliative Medicine, 30 (5), pp.490-498.

Link to Abstract

 

Tsukuura, H et al, (2013) Opioid Use in End-of-Life

Care in Patients With Interstitial Pneumonia

Associated With Respiratory Worsening. Journal

of Pain and Palliative Care Pharmacotherapy, 27 (3),

pp.214-219. Link to Abstract

 

 

Quality of Care

Catania, G et al, (2013) Does quality of life

assessment in palliative care look like a complex

screening program? Health and Quality of Life

Outcomes, 11, pp.7. Link to Abstract

Link to Full Text

 

Claessen, SJ et al, (2013) Measuring relatives'

perspectives on the quality of palliative care: the

Consumer Quality Index Palliative Care. Journal of

Pain and Symptom Management, 45 (5), pp.875-884.

Link to Abstract

 

De Roo, ML et al, (2013) Quality Indicators for

Palliative Care: Update of a Systematic Review.

Journal of Pain and Symptom Management, 46 (4),

pp.556-572. Link to Abstract

 

Lee, J et al, (2013) Improving the Quality of End-

of-Life Care in Long-Term Care Institutions.

Journal of Palliative Medicine, 16 (10), pp.1268-1274.

Link to Abstract.

 

 

 

Leemans, K et al, (2013) Towards a standardized

method of developing quality indicators for

palliative care: protocol of the Quality indicators

for Palliative Care (Q-PAC) study. BMC Palliative

Care, 12, pp.6. Link to Abstract Link to Full Text

 

Lundberg, T et al, (2013) The perspectives of

bereaved family members on their experiences of

support in palliative care. International Journal of

Palliative Nursing, 19 (6), pp.282-288.

Link to Abstract

 

Raijmakers, NJ et al, (2013) Bereaved relatives'

perspectives of the patient's oral intake towards

the end of life: a qualitative study. Palliative

Medicine, 27 (7), pp.665-672. Link to Abstract

 

 

Research in Palliative Care

Lynch, T et al, (2013) Learning from challenges in

the recruitment of patients with advanced cancer

from hospice day care. Progress in Palliative Care,

21 (5), pp.265-271. Link to Abstract

 

McIlfatrick, SJ et al, (2013) Palliative care research

on the island of Ireland over the last decade: a

systematic review and thematic analysis of peer

reviewed publications. BMC Palliative Care, 12 (1),

pp.33. Link to Abstract  Link to Full Text

 

Payne, S, (2013) Recruitment into palliative care

research studies: a common challenge. Progress

in Palliative Care, 21 (5), pp.263-264.

Link to Abstract

 

Stone, PC et al, (2013) Factors affecting

recruitment to an observational multicentre

palliative care study. BMJ Supportive & Palliative

Care, 3 (3), pp.318-323. Link to Full Text

 

 

Spiritual, Ethnic & Cultural Care

Asgeirsdottir, GH et al, (2013) "To Cherish Each

Day as it Comes": a qualitative study of

spirituality among persons receiving palliative

care. Supportive Care in Cancer, 21 (5), pp. 1445-

1451  Link to Abstract

 

Bodek, H, (2013) Facilitating the provision of

quality spiritual care in palliative care. Omega, 67

(1-2), pp.37-41. Link to Abstract

 

Callahan, AM, (2013) A Relational Model for

Spiritually-Sensitive Hospice Care. Journal of

Social Work in End-Of-Life & Palliative Care, 9 (2-3),

pp.158-179. Link to Abstract

 

 

 

 

 

Campbell, CL et al, (2013) Racial/Ethnic

Perspectives on the Quality of Hospice Care.

 American Journal of Hospice and Palliative Medicine,

30 (4), pp.347-353. Link to Abstract

 

Dein, S et al, (2013) Theodicy and End-of-Life Care.

Journal of Social Work in End-Of-Life & Palliative

Care, 9 (2-3), pp.191-208. Link to Abstract

 

Delgado-Guay, MO et al, (2013) Spirituality,

Religiosity, and Spiritual Pain Among Caregivers

of Patients With Advanced Cancer. American

Journal of Hospice and Palliative Medicine, 30 (5),

pp.455-461. Link to Abstract

 

Douglas, SL et al, (2013) The impact of patient

quality of life and spirituality upon caregiver

depression for those with advanced cancer.

Palliative & Supportive Care, 11 (05), pp.389-396.

Link to Abstract

 

Frearson, S et al, (2013) End-of-Life Care for the

British Asian Hindu Community: Preferences and

Solutions. End of Life Journal, 3 (3), pp. 1-8

Link to Full Text

 

Galchutt, P, (2013) A palliative care specific

spiritual assessment: how this story evolved.

Omega, 67 (1-2), pp.79-85.  Link to Abstract

 

Harford, JB et al, (2013) The need for more and

better palliative care for Muslim patients. Palliative

Support Care, 11, pp.1-4. Link to Abstract

 

Hess, D, (2013) Faith Healing and the Palliative

Care Team. Journal of Social Work in End-Of-Life &

Palliative Care, 9 (2-3), pp.180-190. Link to Abstract

 

Liechty, D, (2013) Sacred Content, Secular

Context: A Generative Theory of Religion and

Spirituality for Social Work. Journal of Social Work

in End-Of-Life & Palliative Care, 9 (2-3), pp.123-143.

Link to Abstract

 

Markham, KC, (2013) Improving incidence of

referrals for psychosocial and spiritual

transdisciplinary care in a palliative care service:

focus on brain death. Omega, 67 (1-2), pp.155-160

Link to Abstract

 

McCann, CJ et al, (2013) Dying other, dying self:

Creating culture and meaning in palliative

healthcare. Palliative & Supportive Care, 11 (04),

pp.289-293. Link to Abstract

 

McCormick, AJ, (2013) Buddhist Ethics and End-

of-Life Care Decisions. Journal of Social Work in

End-Of-Life & Palliative Care, 9 (2-3), pp.209-225.

Link to Abstract

 

Nelson-Becker, H, (2013) Spirituality in End-of-Life

and Palliative Care: What Matters? Journal of

Social Work in End-Of-Life & Palliative Care, 9 (2-3),

pp.112-116. Link to Abstract

 

Nichols, SW, (2013) Examining the impact of

spiritual care in long-term care. Omega, 67 (1-2),

 pp.175-184. Link to Abstract

 

Penman, J et al, (2013) The relational model of

spiritual engagement depicted by palliative care

clients and caregivers. International Journal of

Nursing Practice, 19, pp.39-46. Link to Abstract

 

Peteet, JR et al, (2013) Spirituality and religion in

oncology. CA: a Cancer Journal for Clinicians, 63

(4), pp.280-289. Link to Abstract

 

Piotrowski, LF, (2013) Advocating and educating

for spiritual screening assessment and referrals

to chaplains. Omega, 67 (1-2), pp.185-192.

Link to Abstract

 

Pittroff, GE, (2013) The humbled expert: an

exploration of spiritual care expertise. Journal of

Christian Nursing : a Quarterly publication of Nurses

Christian Fellowship, 30 (3), pp.164-169.

Link to Abstract

 

Sulmasy, DP, (2013) Ethos, Mythos, and

Thanatos: Spirituality and Ethics at the End of

Life. Journal of Pain and Symptom Management, 46

(3), pp.447-451. Link to Abstract

 

Taylor, EJ et al, (2013) Hospice Patient and Family

Carer Perspectives on Nurse Spiritual

Assessment. Journal of Hospice & Palliative Nursing,

15 (6), pp.347-354 Link to Abstract

 

Vermandere, M et al, (2013) Outcome Measures of

Spiritual Care in Palliative Home Care: A

Qualitative Study. American Journal of Hospice and

Palliative Medicine, 30 (5), pp.437-444.

Link to Abstract

 

Way, P, (2013) A Practitioner's View of Children

 Making Spiritual Meanings in Bereavement.

Journal of Social Work in End-Of-Life & Palliative

Care, 9 (2-3), pp.144-157. Link to Abstract

 

Zaide, GB et al, (2013) Ethnicity, race, and

advance directives in an inpatient palliative care

consultation service. Palliative Support Care, 11,

pp.5-11. Link to Abstract

 

 

Symptom Management

Booth, S, (2013) Cambridge Breathlessness

Intervention Service (CBIS). Progress in Palliative

Care, 21 (4), pp.224-228. Link to Abstract

 

Clement, PM et al, (2013) Pain management in

palliative cancer patients: a prospective

observational study on the use of high dosages

of transdermal buprenorphine. Acta Clinical

Belgica, 68 (2), pp.87-91. Link to Abstract

 

.

Dietz, I et al, (2013) Evidence for the use of

Levomepromazine for symptom control in the

palliative care setting: a systematic review. BMC

Palliative Care, 12, pp.2. Link to Abstract

Link to Full Text

 

Douglas, CD et al, (2013) Narratives of 'terminal

sedation', and the importance of the intention-

foresight distinction in palliative care practice.

Bioethics, 27 (1), pp.1-11. Link to Abstract

 

Gabriel, J, (2014) Intravenous versus

subcutaneous access for palliative care patients.

British Journal of Nursing (Mark Allen Publishing), 23

(2), pp.S20-22. Link to Abstract

 

Gonçalves, F et al, (2013) A cross-sectional survey

of pain in palliative care in Portugal. Supportive

Care in Cancer,  21 (7), pp. 2033-2039

Link to Abstract

 

Kang, JH et al, (2013) Changes in Symptom

Intensity Among Cancer Patients Receiving

Outpatient Palliative Care. Journal of Pain and

Symptom Management, 46 (5), pp. 652-660

Link to Abstract

 

Mercadante, S et al, (2013) Opioid use and

effectiveness of its prescription at discharge in

an acute pain relief and palliative care unit.

Supportive Care in Cancer, 21 (7), pp. 1853-1859 

Link to Abstract

 

Momen, N et al, (2013) Managing Pain in

Advanced Cancer: A Survey of United Kingdom

General Practitioners and Community Nurses.

Journal of Pain and Symptom Management, 46 (3),

pp.345-354. Link to Abstract

 

Nikles, J et al, (2013) Do pilocarpine drops help

dry mouth in palliative care patients: a protocol

for an aggregated series of n-of-1 trials. BMC

Palliative Care, 12 (1), pp.39. Link to Abstract

Link to Full Text

 

Yamamoto, Y et al, (2013) Simple palliative

mediastinal tracheostomy. The Annals of Thoracic

Surgery, 95 (6), pp.2185-2187. Link to Abstract

 

Yao, Y et al, (2013) Current state of pain care for

hospitalized patients at end of life. American

Journal of Hospital Palliative Care, 30 (2), pp.128-

136. Link to Abstract

 

Zago, M et al, (2013) Evaluation of Therapeutic

Choices for the Treatment of Pain in the Terminal

Oncologic Patient Before and During Hospice

Admission. Journal of Hospice & Palliative Nursing,

15 (6), pp.340-346 Link to Abstract

Terminal Phase

Albers, G et al, (2013) Personal Dignity in the

Terminally Ill from the Perspective of Caregivers:

A Survey among Trained Volunteers and

Physicians. Journal of Palliative Medicine, 16 (9),

pp.1108-1114. Link to Abstract

 

Albrecht, JS et al, (2013) A Nationwide Analysis of

Antibiotic Use in Hospice Care in the Final Week

of Life. Journal of Pain and Symptom Management,

46 (4), pp.483-490. Link to Abstract

 

Campbell, ML et al, (2013) Death Rattle Is Not

Associated with Patient Respiratory Distress: Is

Pharmacologic Treatment Indicated? Journal of

Palliative Medicine, 16 (10), pp.1255-1259.

Link to Abstract

 

Ivanovic, N et al, (2014) Voluntary stopping of

eating and drinking at the end of life - a

'systematic search and review' giving insight into

an option of hastening death in capacitated

adults at the end of life. BMC Palliative Care, 13 (1),

pp.1. Link to Abstract  Link to Full Text

 

Kehl, KA et al, (2013) A Systematic Review of the

Prevalence of Signs of Impending Death and

Symptoms in the Last 2 Weeks of Life. American

Journal of Hospice and Palliative Medicine, 30 (6),

pp.601-616. Link to Abstract

 

Khalid, I et al, (2013) End-of-Life Care in Muslim

Brain-Dead Patients: A 10-Year Experience.

American Journal of Hospice and Palliative Medicine,

30 (5), pp.413-418. Link to Abstract

 

Lokker, ME et al, (2014) Prevalence, impact, and

treatment of death rattle: a systematic review.

Journal of Pain Symptom Management, 47 (1),

pp.105-122. Link to Abstract

 

Mercadamte, S, (2014) Death rattle: critical review

and research agenda. Supportive Care in Cancer,

22 (2), pp.571-575. Link to Abstract

 

Nava, S et al, (2013) Palliative use of non-invasive

ventilation in end-of-life patients with solid

tumours: a randomised feasibility trial. The Lancet

Oncology, 14 (3), pp.219-227. Link to Abstract

 

Putman, MS et al, (2013) Intentional Sedation to

Unconsciousness at the End of Life: Findings

From a National Physician Survey. Journal of Pain

and Symptom Management, 46 (3), pp.326-334.

Link to Abstract

 

Twomey, S et al, (2013) Management of death

rattle at end of life. British Journal of Nursing (Mark

Allen Publishing), 22 (2), pp.81-85. Link to Abstract

 

 

Volunteers

Claxton-Oldfield, S et al, (2013) A Study of the

Motivations of British Hospice Volunteers.

American Journal of Hospice and Palliative Medicine,

30 (6), pp.579-586. Link to Abstract

 

Claxton-Oldfield, S et al, (2013) Holding on to What

You Have Got: Keeping Hospice Palliative Care

Volunteers Volunteering. American Journal of

Hospice and Palliative Medicine, 30 (5), pp.467-472.

Link to Abstract

 

Elliott, G et al, (2013) Psychological issues in

voluntary hospice care. British Journal of Nursing

(Mark Allen Publishing), 22 (7), pp.377-383.

Link to Abstract

 

Gerber, PS, (2013) Last watch: developing an

inpatient palliative volunteer program for U.S

Veterans in hospice. Omega, 67 (1-2), pp.87-95.

Link to Abstract

 

The following sources have been searched for evidence published in the previous three months 

  •          Specialist Palliative Care Journals
  •          Department of Health
  •          BMJ
  •          BMJ Evidence Updates
  •          BMJ Specialities Palliative Care
  •          Cochrane Library
  •          JAMA
  •         Kings Fund
  •         Lancet
  •         Leadership Alliance for Care of the Dying Patient
  •         National Council for Palliative Care
  •         New England Journal of Medicine
  •         NHS England
  •         NHS Scotland
  •         NHS Institute for Innovation and Improvement
  •         NICE Evidence
  •         Scottish Partnership for Palliative Care

Please contact the editor for further information.