General
Asprey, A et al, (2013) Transferring information to
an out-of-hours primary care service for patients
with palliative care needs: an action research
study to improve the use of handover forms.
Primary Health Care Research & Development, 14
(1), pp.7-20. Link to Abstract
Bükki, J et al, (2013) Methicillin-resistant
Staphylococcus aureus (MRSA) management in
palliative care units and hospices in Germany: a
nationwide survey on patient isolation policies
and quality of life. Palliative Medicine, 27, pp.84-90.
Cassel, JB, (2013) The importance of following the
money in the development and sustainability of
palliative care. Palliative Medicine, 27 (2), pp.103-
104 Link to Abstract Link to Full Text
Catania, G et al, (2013) Does quality of life
assessment in palliative care look like a complex
screening program? Health and Quality of Life
Outcomes, 11 (7). pp. 1-8. Link to Abstract
Eastman, P et al, (2013) Palliative care after
attempted suicide in the absence of premorbid
terminal disease: a case series and review of the
literature. Journal of Pain and Symptom
Management, 45 (2), pp.305-309. Link to Abstract
Ersek, M et al, (2013) A nationwide study
comparing end-of-life care for men and women
veterans. Journal of Palliative Medicine, 16 (7),
pp.734-740. Link to Abstract
Hui, D et al, (2013) Concepts and definitions for
"supportive care," "best supportive care,"
"palliative care," and "hospice care" in the
published literature, dictionaries, and textbooks.
Support Care Cancer, 21 (3), pp.659-685.
Krikorian, A et al, (2013) Suffering assessment: a
review of available instruments for use in
palliative care. Journal of Palliative Medicine, 16 (2),
pp.130-142. Link to Abstract
Lavoie, M et al, (2013) The integration of a person-
centered approach in palliative care. Palliative and
Supportive Care, 11 (6), pp.1-12. Link to Abstract
Leong Marc-Aurele, K et al, (2013) A Five-Year
Review of Referrals for Perinatal Palliative Care.
Journal of Palliative Medicine, 16 (10), pp.1232-1236.
Lewis, JM et al, (2013) A social capital framework
for palliative care: supporting health and well-
being for people with life-limiting illness and their
carers through social relations and networks.
Journal of Pain Symptom Management, 45 (1),
pp.92-103. Link to Abstract
Manu, E et al, (2013) Perceptions and attitudes
about hospice and palliative care among
community-dwelling older adults. American
Journal of Hospice and Palliative Care, 30 (2),
pp.153-161. Link to Abstract
McIlfatrick, S et al, (2013) Public awareness and
attitudes toward palliative care in Northern
Ireland. BMC Palliative Care, 12 (1), pp.1-7.
Link to Abstract Link to Full Text
McLeod-Sordjan, R, (2013) Human Becoming:
Death Acceptance: Facilitated Communication
With Low-English Proficiency Patients at End of
Life. Journal of Hospice & Palliative Nursing, 15 (7),
pp.390-395 Link to Abstract
Newman, R, (2013) Palliative Care Funding
Review: Implications for Family Carers. End of
Life Journal, 3 (4), pp.1-. Link to Abstract
Pastor, DK et al, (2013) Uncertainties of the heart:
palliative care and adult heart failure. Home
Healthcare Nurse, 31 (1), pp.29-36. Link to Abstract
Pilkington, VD et al, (2013) Series: Concepts in
end-of-life care: palliative care medicine. Journal
of the Mississippi State Medical Association, 54 (3),
pp.81-90. Link to Abstract
Read, S, (2013) Palliative care for people with
intellectual disabilities: pitfalls and potential.
Palliative Medicine, 27 (1), pp.3-4. Link to Abstract
Reville, B et al, (2013) Education and referral
criteria: impact on oncology referrals to palliative
care. Journal of Palliative Medicine,16 (7), pp.786-
789. Link to Abstract
Risse, GB et al, (2013) Shifting Hospital–Hospice
Boundaries: Historical Perspectives on the
Institutional Care of the Dying. American Journal of
Hospice and Palliative Medicine, 30 (4), pp.325-330.
Sargeant, S et al, (2013) Oral health assessment
and mouth care for children and young people
receiving palliative care. Part one. Nursing
Children and Young People, 25 (2), pp.29-34.
Scott, R, (2011) Transition and caring for young
adults: are you part of the solution? Progress in
Palliative Care, 19 (6), pp.299-303. Link to Abstract
Starks, H et al, (2013) Cost Savings Vary by
Length of Stay for Inpatients Receiving Palliative
Care Consultation Services. Journal of Palliative
Medicine, 16 (10), pp.1215-1220. Link to Abstract
Tang, VL et al, (2013) Trends in Hospice Referral
and Length of Stay at a Veterans Hospital Over
the Past Decade. American Journal of Hospice and
Palliative Medicine, 30 (5), pp.432-436
Taylor, DH et al, (2013) The Effect of Palliative
Care on Patient Functioning. Journal of Palliative
Medicine, 16 (10), pp.1227-1231. Link to Abstract
Timm, H et al, (2013) Mapping and comparison of
palliative care nationally and across nations:
Denmark as a case in point. Mortality, 18 (2),
pp.116-129. Link to Abstract
Wallace, EM et al, (2013) Referral Patterns of
Nonmalignant Patients to an Irish Specialist
Palliative Medicine Service: A Retrospective
Review. American Journal of Hospice and Palliative
Medicine, 30 (4), pp.399-402 Link to Abstract
Cochrane Reviews
Bell, RF et al, (2012) Ketamine as an adjuvant to
opioids for cancer pain. The Cochrane Database of
Systematic reviews, Issue 11, pp.CD003351.
Author’s Conclusion: Since the last version of this
review three new studies were identified but excluded
from the review. Current evidence is insufficient to
assess the benefits and harms of ketamine as an
adjuvant to opioids for the relief of cancer pain. More
RCTs are needed.
Gomes, B et al, (2013) Effectiveness and cost-
effectiveness of home palliative care services for
adults with advanced illness and their caregivers.
The Cochrane Database of Systematic Reviews,
Issue 6. Link to Abstract Link to Full Text
Author’s Conclusions: The results provide clear and
reliable evidence that home palliative care increases
the chance of dying at home and reduces symptom
burden in particular for patients with cancer, without
impacting on caregiver grief. This justifies providing
home palliative care for patients who wish to die at
home. More work is needed to study cost-
effectiveness especially for people with non-
malignant conditions, assessing place of death and
appropriate outcomes that are sensitive to change
and valid in these populations, and to compare
different models of home palliative care, in powered
studies.
Maddocks, M et al, (2013) Neuromuscular
electrical stimulation for muscle weakness in
adults with advanced disease. The Cochrane
Database of Systematic Reviews, Issue 1,
pp.CD009419. Link to Abstract Link to Full Text
Author’s Conclusions: NMES appears an effective means of improving muscle weakness in adults with progressive diseases such as COPD, chronic heart failure and cancer. Further research is required to clarify its place in clinical practice, by determining the optimal parameters for a NMES programme, the patients most likely to benefit, and its impact on morbidity and service use.
Moore, PM et al, (2013) Communication skills
training for healthcare professionals working
with people who have cancer. The Cochrane
Database of Systematic Reviews, Issue 33,
pp.CD003751. Link to Abstract Link to Full Text
Author’s Conclusions: Various CST courses appear
to be effective in improving some types of HCP
communication skills related to information gathering
and supportive skills. We were unable to determine
whether the effects of CST are sustained over time,
whether consolidation sessions are necessary, and
which types of CST programs are most likely to work.
We found no evidence to support a beneficial effect
of CST on HCP 'burnout', patients' mental or physical
health, and patient satisfaction.
Xander, C et al, (2013) Pharmacological
interventions for pruritus in adult palliative care
patients. The Cochrane Database of Systematic
Reviews, Issue 6, pp.CD008320. Link to Abstract
Author’s Conclusions: The findings of this review
indicate that the number of systemic and topical
drugs used for the different subforms of pruritus is
increasing. Different interventions have been shown
to be effective in the treatment of pruritus of different
origins. Nevertheless, an optimal therapy for pruritus
is constrained due to the limited understanding of
crucial itch mediators and receptors in the various
subforms of itch. Ideal antipruritic therapies are still
lacking, especially for palliative care patients. This
systematic review also indicates that there is
insufficient evidence to give any concrete
recommendations regarding treatment of pruritus in
palliative care patients. Due to the very small sample
sizes and poor methodological quality of the majority
of studies that were included, the results of this
review need to be interpreted with caution.
Furthermore, the generalizability is questionable.
Additional studies, and particularly carefully designed
treatment trials, are needed to provide valid evidence
for adequate treatment of pruritus in palliative care
patients.
Reports & Statistics
Bryan, L et al (2013) Quality End of Life Care for
All (QELCA©): A National Pilot of Nursing
Workforce Development Initiative – Evaluation
Report. London: St. Christopher’s Hospice
QELCA©, an end of life care education programme,
was designed by St Christopher’s Hospice, to be
delivered by hospice nurses to nurses working in
acute hospitals. Teams of acute nurse clinical
managers from the same department spend 5 days
based at the hospice in small groups of three or four.
This ensures that all of the clinical nurse managers
from one team or care group share the same or
equivalent experience. Using the hospice setting as a
learning resource, nurses are offered a first-hand
experience of observing and being alongside
specialist nurses as they deliver expert care to
patients and their families at the end of life. In
addition to this practice experience the 5-day
programme combines classroom discussion and
reflection facilitated by experienced specialist
palliative care nurses. The programme then
continues with six months facilitated Action Learning
Sets so that action plans for self, team and
organisation, formulated by the participants on the
final day of their hospice experience, can be
supported in practice and learning from the
programme consolidated.
Henry, C, (2013) New Arrangements for the
National End of Life Care Programme and Recent
Publications. End of Life Journal, 3 (2), pp.1-3.
Link to Abstract Link to Full Text
On 1 April 2013, a new improvement body, NHS
Improving Quality, was established. It is hosted by
the NHS Commissioning Board and brings together
the combined knowledge and experience of a
number of NHS improvement organisations:
- National End of Life Care Programme
- National Cancer Action Team
- NHS Diabetes and Kidney Care
- NHS Improvement
- NHS Institute for Innovation and Improvement.
This article outlines the changes and structure of
Palliative Care within the UK.
Leadership Alliance for the Care of Dying People
(2013) Engagement with Patients, Families,
Carers and Professionals. Link to Full Text
Leadership Alliance for the Care of Dying People
(2014) Care for People in the Last Days and
Hours of Life. Link to Full Text
Neuberger, J (2013) More Care Less Pathway: A
Review of the Liverpool Care Pathway.
There has been a lot of coverage about the Liverpool
Care Pathway (LCP) in the media. This, and many
reports of concerns by patients’ families and some
professionals, led the Minister Norman Lamb to set
up an independent review of the LCP chaired by
Baroness Julia Neuberger. The review recognised
that people died peaceful and dignified deaths where
the LCP was used properly but there were so many
examples where it was not used well that it
recommended phasing out the use of the LCP within
6-12 months.
NHS Scotland 2013 Caring for People in the Last
Days and Hours of Life: Interim Guidance.
Edinburgh: NHS Scotland. Link to Full Text
It has been announced that the Liverpool Care
Pathway (LCP) will be phased out in Scotland over
the next year. The Scottish Government has
accepted the recommendations from the Living and
Dying Well National Advisory Group. This follows the
Neuberger review of the LCP in England, which
found the framework has not always been used
appropriately. Interim guidance on caring for people
in the last days and hours of life has also been
issued to all Scottish health boards, which will be
followed until a new set of guidelines on best practice
is available in 2014.
Attitudes & Ethical Issues
Abba, K et al, (2013) Interventions to encourage
discussion of end-of-life preferences between
members of the general population and the
people closest to them - a systematic literature
review. BMC Palliative Care, 12 (1), pp.1-12.
Link to Abstract Link to Full Text
Black, PG et al, (2013) Can a patient designate his
doctor as his proxy decision maker? Pediatrics,
131 (5), pp.986-990. Link to Abstract
Grossberg, RI et al, (2013) Direct care staff and
parents'/legal guardians' perspectives on end-of-
life care in a long-term care facility for medically
fragile and intellectually disabled pediatric and
young adult residents. Palliative & Supportive Care,
11 (04), pp.307-314. Link to Abstract
Jox, RJ et al, (2013) European perspectives on
ethics and law in end-of-life care. Handbook of
Clinical Neurology, 118, pp.155-165. Link to Abstract
McIlfatrick, S et al, (2013) Public awareness and
attitudes toward palliative care in Northern
Ireland. BMC Palliative Care, 12 (1), pp.34.
Link to Abstract Link to Full Text
Radbruch, L et al, (2013) The Lisbon Challenge:
Acknowledging Palliative Care as a Human Right.
Journal of Palliative Medicine, 16 (3), pp. 301-304.
Rushton, CH et al, (2013) Addressing Moral
Distress: Application of a Framework to Palliative
Care Practice. Journal of Palliative Medicine, 16 (9),
pp.1080-1088. Link to Abstract
Rushton, CH et al, (2013) A Framework for
Understanding Moral Distress among Palliative
Care Clinicians. Journal of Palliative Medicine, 16
(9), pp.1074-1079. Link to Abstract
Spranzi, M, (2013) The French euthanasia debate:
exception and solidarity. Cambridge Quarterly of
Healthcare Ethics : CQ : the International Journal of
Healthcare Ethics Committees, 22 (3), pp.254-262.
Ten Have, H et al, (2013) Palliative Sedation
Versus Euthanasia: An Ethical Assessment.
Journal of Pain and Symptom Management, 47 (1),
pp. 123-136. Link to Abstract
Zamer, JA et al, (2013) Religious Leaders'
Perspectives of Ethical Concerns at the End of
Life. Journal of Hospice & Palliative Nursing, 15 (7),
pp.396-402 Link to Abstract
Bereavement
Allen, JY et al, (2013) Bereavement among
hospice caregivers of cancer patients one year
following loss: predictors of grief, complicated
grief, and symptoms of depression. Journal of
Palliative Medicine, 16 (7), pp.745-751.
Brownhill, S et al, (2013) A decision model for
community nurses providing bereavement care.
British Journal of Community Nursing, 18 (3), pp.133-
139. Link to Abstract
Kim, Y et al, (2013) Finding Benefit in
Bereavement among Family Cancer Caregivers.
Journal of Palliative Medicine, 16 (9), pp.1040-1047.
McKiernan, F et al, (2013) Psychological Aspects
of Bereavement in Adults: Preliminary
Development of the Bereavement Experiences
Index. Journal of Social Work in End-Of-Life &
Palliative Care, 9 (1), pp.7-26. Link to Abstract
Wintermeyer-Pingel, SA et al, (2013) Improving a
grief and loss program: caring for patients,
families, and staff. Omega, 67 (1-2), pp.233-239.
Carer & Family Support
Doll, KM et al, (2013) Outpatient end of life
discussions shorten hospital admissions in
gynecologic oncology patients. Gynecologic
Oncology, 130 (1), pp.152-155. Link to Abstract
Gaab, EM et al, (2013) Primary Caregivers'
Decisions Around Communicating About Death
With Children Involved in Pediatric Palliative Care.
Journal of Hospice & Palliative Nursing, 15 (6),
pp.322-329 Link to Abstract
Guerriere, DN et al, (2013) Family caregiver
satisfaction with home-based nursing and
physician care over the palliative care trajectory:
Results from a longitudinal survey questionnaire.
Palliative Medicine, 27 (7), pp. 632-638
Hottensen, D, (2013) Bereavement: caring for
families and friends after a patient dies. Omega:
Journal of Death and Dying, 67 (1-2), pp.121-126.
Hudson, P et al, (2013) Reducing the
psychological distress of family caregivers of
home-based palliative care patients: short-term
effects from a randomised controlled trial.
Psychooncology, 22 (9), pp. 1987-1993.
Mystakidou, K et al, (2013) Caregivers' anxiety and
self-efficacy in palliative care. European Journal of
Cancer Care (Engl), 22, pp.188-195. Link to Abstract
Oechsle, K et al, (2013) Anxiety and Depression in
Caregivers of Terminally Ill Cancer Patients:
Impact on Their Perspective of the Patients'
Symptom Burden. Journal of Palliative Medicine, 16
(9), pp.1095-1101. Link to Abstract
Oechsle, K et al, (2013) Symptom burden in
palliative care patients: perspectives of patients,
their family caregivers, and their attending
physicians. Support Care Cancer, 21 (7), pp. 1955-
1962 Link to Abstract
Communication Skills
Berry, P, (2013) Speaking truth to power: a
challenge for the field of palliative care.
International Journal of Palliative Nursing, 19 (1),
pp.3. Link to Abstract
Broom, A et al, (2013) The art of letting go: referral
to palliative care and its discontents. Social
Science and Medicine, 78 , pp.9-16. Link to Abstract
Chou, WC et al, (2013) Impact of palliative care
consultative service on disease awareness for
patients with terminal cancer. Support Care
Cancer, 21 (7), pp. 1973-1981 Link to Abstract
Jacobsen, J et al, (2013) Misunderstandings about
prognosis: an approach for palliative care
consultants when the patient does not seem to
understand what was said. Journal of Palliative
Medicine, 16, pp.91-95. Link to Abstract
Johnson, LA et al, (2013) Does communication
skills training make a difference to patients'
experiences of consultations in oncology and
palliative care services? European Journal of
Cancer Care (Engl), 22, pp.202-209. Link to Abstract
Marshall, S et al, (2013) Encouraging/Supporting
Dying Patients to Talk to Their Children. End of
Life Journal, 3 (2), pp.1-4. Link to Full Text
Reynolds, K, (2013) Requests for Non-Disclosure
of Poor Prognoses to Patients. Journal of End of
Life, 3 (4), pp.1-7. Link to Full Text
Rhondali, W et al, (2013) Medical oncologists'
perception of palliative care programs and the
impact of name change to supportive care on
communication with patients during the referral
process. A qualitative study. Palliative Support
Care, 11 (5), pp.397-404 Link to Abstract.
Community & Out-Patient Care
Blackford, J et al, (2013) Facilitating advance care
planning in community palliative care:
conversation starters across the client journey.
International Journal of Palliative Nursing, 19 (3),
pp.132-139. Link to Abstract
Brazil, K et al, (2013) A Comparison of Support
Needs Between Rural and Urban Family
Caregivers Providing Palliative Care. American
Journal of Hospital Palliative Care, 31 (1), pp. 13-19
Bükki, J et al, (2013) Palliative care needs,
symptoms, and treatment intensity along the
disease trajectory in medical oncology
outpatients: a retrospective chart review. Support
Care in Cancer, 21 (6), pp. 1743-1750
Carson, K et al, (2013) More than physical
function? Exploring physiotherapists'
experiences in delivering rehabilitation to
patients requiring palliative care in the
community setting. Journal of Palliative Care, 29
(1), pp.36-44. Link to Abstract
Chapman, MD et al, (2013) The Vulnerable Elders
Survey and its prognostic relationship to survival
in an older community-based palliative
population. BMJ Supportive & Palliative Care, 3 (3),
pp.335-342. Link to Abstract
Claessen, SJ et al, (2013) How do GPs identify a
need for palliative care in their patients? An
interview study. BMC Family Practice, 14, pp.42.
Collis, E et al, (2013) Care of the dying patient in
the community. BMJ, 347, pp.f4085.
Connell, T et al, (2013) Quality of life of
community-based palliative care clients and their
caregivers. Palliative & Supportive Care, 11 (04),
pp.323-330. Link to Abstract
Demiglio, L et al, (2013) A qualitative study
examining the sustainability of shared care in the
delivery of palliative care services in the
community. BMC Palliative Care, 12 (1), pp.32.
Hall, S et al, (2013) An evaluation of the activity of
a 7-day, nurse-led specialist palliative care
service in an acute district general hospital.
International Journal of Palliative Nursing, 19 (3),
pp.148-150. Link to Abstract
Kirkendall, AM et al, (2013) Staff Perspectives on
the Provision of End-of-Life Care in a Community
Residence for Older Adults with Developmental
Disabilities. Journal of Palliative Medicine, 16 (9),
pp.1121-1124. Link to Abstract
McNamara, BA et al, (2013) Early admission to
community-based palliative care reduces use of
emergency departments in the ninety days before
death. Journal of Palliative Medicine, 16 (7), pp.
774-779. Link to Abstract
Merlin, JS et al, (2013) Chronic pain in the
outpatient palliative care clinic. American Journal
of Hospital Palliative Care, 30, pp.197-203.
Murphy, A et al, (2013) Health Care Utilization by
Patients Whose Care Is Managed by a Primary
Palliative Care Clinic. Journal of Hospice &
Palliative Nursing, 15 (7), pp.372-379 Link to Abstract
Nyatanga, B, (2013) Reforming the NHS: an
opportunity for palliative care in the community?
British Journal of Community Nursing, 18 (5), pp.254.
Peng, JK et al, (2013) What Influences the
Willingness of Community Physicians to Provide
Palliative Care for Patients with Terminal Cancer?
Evidence from a Nationwide Survey. Japanese
Journal of Clinical Oncology, 43 (3), pp. 278-285
Link to Abstract Link to Full Text
Rhondali, W et al, (2013) Medical oncologists'
perception of palliative care programs and the
impact of name change to supportive care on
communication with patients during the referral
process. A qualitative study. Palliative &
Supportive Care, 11 (05), pp.397-404.
Walker, KA et al, (2013) Effectiveness of
Integration of Palliative Medicine Specialist
Services into the Intensive Care Unit of a
Community Teaching Hospital. Journal of Palliative
Medicine, 16 (10), pp.1237-1241. Link to Abstract
Wiese, CH et al, (2013) International
recommendations for outpatient palliative care
and prehospital palliative emergencies - a
prospective questionnaire-based investigation.
BMC Palliative Care, 12, pp.10. Link to Abstract
Complementary Therapy
Ducloux, D et al, (2013) Promoting Sleep for
Hospitalized Patients With Advanced Cancer With
Relaxation Therapy: Experience of a Randomized
Study. American Journal of Hospice and Palliative
Medicine, 30 (6), pp.536-540. Link to Abstract
Engelman, SR, (2013) Palliative care and use of
animal-assisted therapy. Omega, 67 (1-2), pp.63-
Garcia, MK et al, (2013) Systematic review of
acupuncture in cancer care: a synthesis of the
evidence. Journal of Clinical Oncology: Official
Journal of the American Society of Clinical Oncology,
31 (7), pp.952-960. Link to Abstract
Mitchinson, A et al, (2014) Integrating Massage
Therapy Within the Palliative Care of Veterans
With Advanced Illnesses: An Outcome Study.
American Journal of Hospital Palliative Care, 31 (1),
pp. 6-12 Link to Abstract
Molassiotis, A et al, (2012) Acupuncture for cancer-
related fatigue in patients with breast cancer: a
pragmatic randomized controlled trial. Journal of
Clinical Oncology: Official Journal of the American
Society of Clinical Oncology, 30 (36), pp.4470-4476.
Thompson, A et al, (2013) Feasibility Study to
Implement Nurse-Delivered Massage for Pain
Management. Journal of Hospice & Palliative
Nursing, 15 (7), pp.403-409 Link to Abstract
Vandergrift, A, (2013) Use of complementary
therapies in hospice and palliative care. Omega,
67 (1-2), pp.227-232. Link to Abstract
Viliotti, M, (2013) Complementary Therapy:
Comfort for Those in Need of Palliative Care. End
of Life Journal, 3 (4), pp.1-4. Link to Full Text
Confusion & Dementia
Boogaard, JA et al, (2013) Feedback on end-of-life
care in dementia: the study protocol of the
FOLlow-up project. BMC Palliative Care, 12 (1),
pp.29. Link to Full Text
Coggins, CC et al, (2013) Assessment and
management of delirium: A focus on hepatic
encephalopathy. Palliative & Supportive Care, 11
(4), pp.341-352. Link to Abstract
Davies, J et al, (2013) Advance Decisions to
Refuse Treatment in Cases of Dementia. End of
Life Journal, 3 (2), pp. 1-5 Link to Full Text
Dempsey, D, (2013) Advance care planning for
people with dementia: benefits and challenges.
International Journal of Palliative Nursing, 19 (5),
pp.227-234. Link to Abstract
Gonçalves, F et al, (2013) Variation in the
incidence of agitated delirium during the day in a
palliative care unit: a preliminary report. American
Journal of Hospice and Palliative Medicine, 30 (2),
pp.111-113. Link to Abstract
Iliffe, S et al, (2013) Modelling the landscape of
palliative care for people with dementia: a
European mixed methods study. BMC Palliative
Care, 12 (1), pp.30. Link to Full Text
Johansson, ÅK et al, (2013) Grief Among
Demented Elderly Individuals: A Pilot Study.
American Journal of Hospice and Palliative Medicine,
30 (5), pp.445-449. Link to Abstract
Jones, BW, (2013) Critically Appraised Topic: The
Effect of Hospice Care in Patients With Dementia.
American Journal of Hospice and Palliative Medicine,
30 (6), pp.590-593. Link to Abstract
Kostrzewa, AS, (2013) Facing dementia:
integrating palliation into all aspects of care.
Creative Nursing, 19 (1), pp.12-15. Link to Abstract
Pace, V et al, (2013) Palliative Care and Advanced
Dementia: The Croydon Project. End of Life
Journal, 3 (4), pp.1-5. Link to Full Text
Roberts, D et al, (2013) A palliative approach to
care of residents with dementia. Nursing Older
People, 25 (2), pp.32-36. Link to Abstract
Szarpa, KL et al, (2013) The Prodrome to Delirium:
A Grounded Theory Study. Journal of Hospice &
Palliative Nursing, 15 (6), pp.332-337 Link to Abstract
Yeaman, PA et al, (2013) Providing Quality
Palliative Care in End-Stage Alzheimer Disease.
American Journal of Hospice and Palliative Medicine,
30 (5), pp.499-502. Link to Abstract
Yeaman, PA et al, (2013) Relationship of Physical
and Functional Independence and Perceived
Quality of Life of Veteran Patients With Alzheimer
Disease. American Journal of Hospice and Palliative
Medicine, 30 (5), pp.462-466. Link to Abstract
Elderly Care
Ersek, M et al, (2013) Geriatric Palliative Care in
Long-Term Care Settings with a Focus on
Nursing Homes. Journal of Palliative Medicine, 16
(10), pp.1180-1187. Link to Abstract
Gardiner, C et al, (2013) Palliative care for frail
older people: A cross-sectional survey of
patients at two hospitals in England. Progress in
Palliative Care, 21 (5), pp.272-277. Link to Abstract
Ladha, A et al, (2013) Care of the frail elder: the
nexus of geriatrics and palliative care. Minnesota
medicine, 96 (4), pp.39-42. Link to Abstract
Lillie, AK et al, (2013) Musculoskeletal pain in
older adults at the end-of-life: a systematic
search and critical review of the literature with
priorities for future research. BMC Palliative Care,
12 (1), pp.27. Link to Full Text
Muller-Mundt, G et al, (2013) End of life care for
frail older patients in family practice (ELFOP)—
protocol of a longitudinal qualitative study on
needs, appropriateness and utilisation of
services. BMC Family Practice, 14, pp.52.
Vosit-Steller, J et al, (2013) Perception of Dignity in
Older People and at the End of Life. End of Life
Journal, 3 (2) Link to Full Text
Emergencies in Palliative Care
Kjørstad, OJ et al, (2013) Cardiopulmonary
resuscitation in palliative care cancer patients.
Tidsskrift for Den Norske Laegeforening, 133 (4),
pp.417-421. Link to Full Text
Lamba, S et al, (2013) Palliative care provision in
the emergency department: barriers reported by
emergency physicians. Journal of Palliative
Medicine, 16 (2), pp.143-147. Link to Abstract
Lawrenson, R et al, (2013) Palliative care patients'
use of emergency departments. The New Zealand
Medical Journal, 126 (1372), pp.80-88.
Quest, T et al, (2013) Demonstrations of clinical
initiatives to improve palliative care in the
emergency department: a report from the IPAL-
EM Initiative. Annals of Emergency Medicine, 61 (6),
pp.661-667. Link to Abstract
Shreves, A et al, (2013) Emergency management
of dyspnea in dying patients. Emergency Medicine
Practice, 15 (5), pp.1-19 Link to Abstract
Health Professionals
Brummen, B et al, (2013) Working in a medicalised
world: the experiences of palliative care nurse
specialists and midwives. International Journal of
Palliative Nursing, 19, pp.85-91. Link to Abstract
Corcoran, AM et al, (2013) Pilot test of a three-
station palliative care observed structured
clinical examination for multidisciplinary trainees.
The Journal of Nursing Education, 52 (5), pp.294-298.
Dickinson, GE, (2013) End-of-Life and Palliative
care Education in US Pharmacy Schools.
American Journal of Hospice and Palliative Medicine,
30 (6), pp.532-535. Link to Abstract
Dietz, I et al, (2013) Errors in palliative care: kinds,
causes, and consequences: a pilot survey of
experiences and attitudes of palliative care
professionals. Journal of Palliative Medicine, 16 (1),
pp.74-81. Link to Abstract
Dimitrov, N, (2013) Ethical tools for physician
assistant students: implementation of palliative
care training in an ethical framework. The Journal
of Physician Assistant Education: the Official Journal
of the Physician Assistant Education Association, 24
(1), pp.50-53. Link to Full Text
Foo, WT et al, (2013) Factors Considered in End-
of-Life Care Decision Making by Health Care
Professionals. American Journal of Hospice and
Palliative Medicine, 30 (4), pp.354-358.
Horne-Thompson, A et al, (2011) The benefits of
interdisciplinary practice in a palliative care
setting: a music therapy and physiotherapy pilot
project. Progress in Palliative Care, 19 (6), pp.304-
308. Link to Abstract
Mougalian, SS et al, (2013) Palliative care training
and associations with burnout in oncology
fellows. The Journal of Supportive Oncology, 11 (2),
pp.95-102. Link to Abstract
Oya, H et al, (2013) Mandatory palliative care
education for surgical residents: initial focus on
teaching pain management. Japanese Journal
Clinical Oncology, 43, pp.170-175. Link to Full Text
Pelayo-Alvarez, M et al, (2013) Clinical
Effectiveness of Online Training in Palliative Care
of Primary Care Physicians. Journal of Palliative
Medicine, 16 (10), pp.1188-1196. Link to Abstract
Raunkiaer, M et al, (2013) Interventions
concerning competence building in community
palliative care services - a literature review.
Scandinavian Journal Caring Sciences, 27 (4), pp.
804-819 Link to Abstract
Sanchez-Reilly, S et al, (2013) Caring for oneself to
care for others: physicians and their self-care.
The Journal of Supportive Oncology, 11 (2), pp.75-81.
Schulz, C et al, (2013) Evaluating an evidence-
based curriculum in undergraduate palliative care
education: piloting a phase II exploratory trial for
a complex intervention. BMC Medical Education,
13, pp.1. Link to Full Text
Snyder, S et al, (2013) Physician Knowledge,
Attitude, and Experience With Advance Care
Planning, Palliative Care, and Hospice: Results of
a Primary Care Survey. American Journal of
Hospice and Palliative Medicine, 30 (5), pp.419-424.
Supiano, KP, (2013) Weaving interdisciplinary and
discipline-specific content into palliative care
education: one successful model for teaching
end-of-life care. Omega, 67 (1-2), pp.201-206.
Terashita-Tan, S, (2013) Striving for wholeness
and transdisciplinary teamwork at a pacific
basin's pain and palliative care department.
Omega, 67 (1-2), pp.207-212. Link to Abstract
Weisenfluh, SM et al, (2013) Professional and
Educational Needs of Hospice and Palliative Care
Social Workers. Journal of Social Work in End-Of-
Life & Palliative Care, 9 (1), pp.58-73.
White, KR et al, (2013) Voices From the Bedside:
Palliative Nurses' Perceptions of Current
Practices and Challenges. Journal of Hospice &
Palliative Nursing, 15 (6), pp.360-365
Hospice at Home
Alexander, T et al, (2013) Pre-Discharge Home
Visits for Terminally Ill Hospital Patients. End of
Life Journal, 3 (4), pp.1-4. Link to Full Text
Bergdahl, E et al, (2013) Co-creating possibilities
for patients in palliative care to reach vital goals –
a multiple case study of home-care nursing
encounters. Nursing Inquiry, 20 (4), pp. 341-351
Cobbe, S et al, (2013) A profile of hospice-at-home
physiotherapy for community-dwelling palliative
care patients. International Journal of Palliative
Nursing, 19 (1), pp.39-45. Link to Abstract
Ewing, G et al, (2013) The Carer Support Needs
Assessment Tool (CSNAT) for Use in Palliative
and End-of-life Care at Home: A Validation Study.
Journal of Pain and Symptom Management, 46 (3),
pp.395-405. Link to Abstract
Flanagan-Kaminsky, D, (2013) Intentional
anticipatory mourning, caregiver and
bereavement support program for terminally ill
veterans, their families & caregivers in the VA
Contract Home Hospice Program. Omega, 67 (1-2),
pp.69-77. Link to Abstract
Gill, A et al, (2013) Predictors of home death in
palliative care patients: a critical literature review.
Journal of Palliative Care, 29 (2), pp.113-118.
Link to Abstract Link to Full Text
Jang, RW et al, (2013) Impact of an Oncology
Palliative Care Clinic on Access to Home Care
Services. American Journal of Hospice and Palliative
Medicine, 30 (5), pp.425-431. Link to Abstract
Luckett, T et al, (2013) Do community specialist
palliative care services that provide home
nursing increase rates of home death for people
with life-limiting illnesses? A systematic review
and meta-analysis of comparative studies. Journal
of Pain and Symptom Management, 45 (2), pp.279-
297. Link to Abstract
Lynch, S, (2013) Hospice and palliative care
access issues in rural areas. American Journal of
Hospice Palliative Care, 30 (2), pp.172-177.
Ornstein, K et al, (2013) Reduction in Symptoms
for Homebound Patients Receiving Home-Based
Primary and Palliative Care. Journal of Palliative
Medicine, 16 (9), pp.1048-1054. Link to Abstract
Hospital Based Palliative Care
Albanese, TH et al, (2013) Assessing the Financial
Impact of an Inpatient Acute Palliative Care Unit
in a Tertiary Care Teaching Hospital. Journal of
Palliative Medicine, 16 (3), pp. 289-294.
Al-Kindi, SG et al, (2013) Pattern of hospitalization
of patients with cancer in an acute palliative care
setting: Qatar's experience. American Journal of
Hospice Palliative Care, 30, pp.25-28.
Cheng, SY et al, (2013) Evaluation of inpatient
multidisciplinary palliative care unit on terminally
ill cancer patients from providers' perspectives: a
propensity score analysis. Japanese Journal of
Clinical Oncology, 43 (2), pp.161-169.
Chou, WC et al, (2013) Comparing end-of-life care
for hospitalized patients with chronic obstructive
pulmonary disease and lung cancer in Taiwan.
Journal of Palliative Care, 29 (1), pp.29-35.
Daly, D et al, (2013) Building a transdisciplinary
approach to palliative care in an acute care
setting. Omega, 67 (1-2), pp.43-51. Link to Abstract
Conclaves, F, (2013) Initial Assessment of
Patients Without Cognitive Failure Admitted in
Palliative Care. American Journal of Hospice
Palliative Care, 31 (1), pp. 33-37 Link to Abstract
Got, M et al, (2013) Palliative care need and
management in the acute hospital setting: a
census of one New Zealand Hospital. BMC
Palliative Care, 12, pp.15. Link to Full Text
Got, M et al, (2013) The nature of, and reasons for,
'inappropriate' hospitalisations among patients
with palliative care needs: A qualitative
exploration of the views of generalist palliative
care providers. Palliative Medicine, 27 (8), pp. 747-
756 Link to Abstract
Got, M et al, (2013) What is the extent of
potentially avoidable admissions amongst
hospital in-patients with palliative care needs?
BMC Palliative Care, 12, pp.9. Link to Full Text
Roberts, D et al, (2013) Evaluating palliative care
ward staffing using bed occupancy, patient
dependency, staff activity, service quality and
cost data. Palliative Medicine, 27 (2), pp.123-130.
Wit Kamp, FE et al, (2013) Improving the quality of
palliative and terminal care in the hospital by a
network of palliative care nurse champions: the
study protocol of the Pal Tec-H project. BMC
Health Services Research, 13, pp.115.
Nutrition
Canfield, KN et al, (2013) Forgoing artificial
nutrition and hydration: what to make of parents'
views. Pediatrics, 131 (5), pp.993-994.
Arrival, Y et al, (2013) A national observational
study of the prevalence and use of enteral tube
feeding, parenteral nutrition and intravenous
glucose in cancer patients enrolled in specialized
palliative care. Nutrients, 5 (1), pp.267-282.
Rapport, A et al, (2013) Parental perceptions of
forgoing artificial nutrition and hydration during
end-of-life care. Pediatrics, 131 (5), pp.861-869.
Stiles, E, (2013) Providing artificial nutrition and
hydration in palliative care. Nursing Standard, 27
(20), pp.35-42. Link to Abstract
Wallengren, O et al, (2013) Dietary energy density,
inflammation and energy balance in palliative
care cancer patients. Clinical Nutrition, 32 (1),
pp.88-92. Link to Abstract
Paediatric Palliative Care
Bergstraesser, E, (2013) Pediatric palliative care-
when quality of life becomes the main focus of
treatment. European Journal of Pediatrics, 172 (2),
pp.139-150. Link to Abstract
Bergstraesser, E et al, (2013) The development of
an instrument that can identify children with
palliative care needs: the Paediatric Palliative
Screening Scale (PaPaS Scale): a qualitative
study approach. BMC Palliative Care, 12 (1), pp.20.
Link to Abstract Link to Full Text
Bergstraesser, E et al, (2013) The needs of
professionals in the palliative care of children
and adolescents. European Journal of Pediatrics,
172 (1), pp.111-118. Link to Abstract
Bradford, N et al, (2013) The case for home based
telehealth in pediatric palliative care: a
systematic review. BMC Palliative Care, 12, pp.4.
Link to Abstract Link to Full Text
Chang, E et al, (2013) Characteristics influencing
location of death for children with life-limiting
illness. Archives of Disease in Childhood, 98 (6),
pp.419-424. Link to Abstract Link to Full Text
Chavoshi, N et al, (2013) Resource Utilization
among Individuals Dying of Pediatric Life-
Threatening Diseases. Journal of Palliative
Medicine, 16 (10), pp.1210-1214. Link to Abstract
Couch, E et al, (2013) Oral health perceptions of
paediatric palliative care nursing staff.
International Journal of Palliative Nursing, 19 (1),
pp.9-15. Link to Abstract
Downing, JD et al, (2013) Developing children's
palliative care in Africa through beacon centres:
lessons learnt. BMC Palliative Care, 12, pp.8.
Link to Abstract Link to Full Text
Frey, E et al, (2013) Transitional care of a
childhood cancer survivor to adult services:
facilitating the process of individual access to
different models. Current Opinion in Supportive and
Palliative Care, 7 (3), pp.309-313 Link to Abstract
Gupta, V et al, (2013) "That must be so hard"-
Examining the impact of children's palliative care
services on the psychological well-being of
parents. Clinical Child Psychology Psychiatry, 18 (1),
pp.91-99. Link to Abstract
Hain, R et al, (2013) Paediatric palliative care:
development and pilot study of a 'Directory' of
life-limiting conditions. BMC Palliative Care, 12 (1),
pp.43. Link to Abstract Link to Full Text
Hex, N et al, (2013) Cost-effectiveness of follow-
up services for childhood cancer survivors
outside the cancer setting. Current Opinion in
Supportive and Palliative Care, 7 (3), pp.314-317
Keele, L et al, (2013) Differences in characteristics
of dying children who receive and do not receive
palliative care. Pediatrics, 132 (1), pp.72-78.
Martin, M, (2013) Missed opportunities: a case
study of barriers to the delivery of palliative care
on neonatal intensive care units. International
Journal of Palliative Nursing, 19 (5), pp.251-256.
Noyes, J et al, (2013) Evidence-based planning
and costing palliative care services for children:
novel multi-method epidemiological and
economic exemplar. BMC Palliative Care, 12 (1),
pp.18. Link to Abstract Link to Full Text
O'Shea, ER et al, (2013) Understanding pediatric
palliative care: what it is and what it should be.
Journal of Pediatric Oncology Nursing, 30 (1), pp.34-
44. Link to Abstract
Schmidt, P et al, (2013) Did Increased Availability
of Pediatric Palliative Care Lead to Improved
Palliative Care Outcomes in Children with
Cancer? Journal of Palliative Medicine, 16 (9),
pp.1034-1039. Link to Abstract
Skinner, R et al, (2013) Developing international
consensus for late effects screening and
guidance. Current Opinion in Supportive and
Palliative Care, 7 (3), pp.303-308 Link to Abstract
Thompson, LA et al, (2013) Chronic Pain
Management as a Barrier to Pediatric Palliative
Care. American Journal of Hospice and Palliative
Care, 30 (8), pp. 764-767 Link to Abstract
Wager, J et al, (2013) International
multiprofessional course in pediatric palliative
care: benefits and challenges. Journal of Palliative
Medicine, 16, pp.96-99. Link to Abstract
Wiener, L et al, (2013) Cultural and religious
considerations in pediatric palliative care.
Palliative Support Care, 11 (1), pp.47-67.
Link to Abstract Link to Full Text
Wray, J et al, (2013) Exploring perceptions of
psychological services in a children's hospice in
the United Kingdom. Palliative & Supportive Care,
11 (05), pp.373-382. Link to Abstract
Palliative Care: Non-Oncology
Harding, R et al, (2013) Can palliative care
integrated within HIV outpatient settings improve
pain and symptom control in a low-income
country? A prospective, longitudinal, controlled
intervention evaluation. AIDS Care, 25 (7),
pp.795-804. Link to Abstract Link to Full Text
Horton, R et al, (2013) Implementing a palliative
care trial in advanced COPD: a feasibility
assessment (the COPD IMPACT study). Journal of
Palliative Medicine, 16, pp.67-73. Link to Abstract
Hsu, N-C et al, (2013) Noncancer Palliative Care:
The Lost Pieces in an Acute Care Setting in
Taiwan. American Journal of Hospice and Palliative
Medicine, 30 (4), pp.334-338. Link to Abstract
Huang, YT, (2013) Challenges and responses in
providing palliative care for people living with
HIV/AIDS. International Journal of Palliative Nursing,
19 (5), pp.218, 220-215. Link to Abstract
Hussain, J et al, (2013) End-of-life care in
neurodegenerative conditions: outcomes of a
specialist palliative neurology service.
International Journal of Palliative Nursing, 19 (4),
pp.162-169. Link to Abstract
Shah, AB et al, (2013) Failing the failing heart: a
review of palliative care in heart failure. Reviews
in Cardiovascular Medicine, 14 (1), pp.41-48.
Walker, RW, (2013) Palliative care and end-of-life
planning in Parkinson's disease. Journal of Neural
Transmission, 120 (4), pp. 635-638
Wool, C, (2013) Clinician confidence and comfort
in providing perinatal palliative care. Journal of
Obstetric, Gynecologic & Neonatal Nursing, 42 (1),
pp.48-58. Link to Abstract Link to Full Text
Palliative Care: Oncology
Antonuzzo, A et al, (2013) Supportive care and not
only palliative care in the route of cancer patients.
Supportive Care in Cancer, 21 (3), pp.657-658.
No Abstract Available
Bakitas, M et al, (2013) Oncologists' perspectives
on concurrent palliative care in a National Cancer
Institute-designated comprehensive cancer
center. Palliative & Supportive Care, 11 (05), pp.415-
423. Link to Full Text
Fahy, BN, (2013) Palliative care for the surgical
oncologist: embracing the palliativist within.
Surgery, 153 (1), pp.1-3. No Abstract Available
Ford, DW et al, (2013) Palliative and end-of-life
care in lung cancer: Diagnosis and management
of lung cancer, 3rd ed: American College of
Chest Physicians evidence-based clinical
practice guidelines. Chest, 143 (5 Suppl),
pp.e498S-512S. Link to Abstract
Greer, JA et al, (2013) Early integration of
palliative care services with standard oncology
care for patients with advanced cancer. CA: a
cancer journal for clinicians, 63 (5), pp.349-363.
Hydeman, J, (2013) Improving the integration of
palliative care in a comprehensive oncology
center: increasing primary care referrals to
palliative care. Omega, 67 (1-2), pp.127-134.
Irwin, KE et al, (2013) Early palliative care and
metastatic non-small cell lung cancer: Potential
mechanisms of prolonged survival. Chronic
Respiratory Disease, 10 (1), pp.35-47.
Jang, DW et al, (2013) Palliative surgery for head
and neck cancer with extensive skin involvement.
The Laryngoscope, 123 (5), pp.1173-1177.
Johnsen, A et al, (2013) A randomised, multicentre
clinical trial of specialised palliative care plus
standard treatment versus standard treatment
alone for cancer patients with palliative care
needs: the Danish palliative care trial (DanPaCT)
protocol. BMC Palliative Care, 12 (1), pp.37.
Kaasa, S, (2013) Integration of general oncology
and palliative care. The Lancet Oncology, 14 (7),
pp.571-572. Link to Abstract
Kao, C-Y et al, (2014) Effects of the hospital-based
palliative care team on the care for cancer
patients: An evaluation study. International Journal
of Nursing Studies, 51 (2), pp.226-235.
Kwon, JH et al, (2013) Clinical characteristics of
cancer patients referred early to supportive and
palliative care. Journal of Palliative Medicine, 16,
pp.148-155. Link to Abstract
Leadbeater, M, (2013) The role of a community
palliative care specialist nurse team in caring for
people with metastatic breast cancer. International
Journal of Palliative Nursing, 19 (2), pp.93-97.
López-Saca, JM et al, (2013) Hypomagnesemia as
a possible explanation behind episodes of severe
pain in cancer patients receiving palliative care.
Support Care Cancer, 21 (2), pp.649-652.
McGrath, P, (2013) End-of-Life Care in
Hematology: Update From Australia. Journal of
Social Work in End-Of-Life & Palliative Care, 9 (1),
pp.96-110. Link to Abstract
Morita, T et al, (2013) Effects of a programme of
interventions on regional comprehensive
palliative care for patients with cancer: a mixed-
methods study. The Lancet Oncology, 14 (7),
pp.638-646. Link to Abstract
Nakano, K et al, (2013) Living with pleasure in
daily life at the end of life: Recommended care
strategy for cancer patients from the perspective
of physicians and nurses. Palliative & Supportive
Care, 11 (05), pp.405-413. Link to Abstract
Otis-Green, S et al, (2013) Palliative care
opportunities for women with advanced ovarian
cancer associated with intraperitoneal
chemotherapy. Journal of Palliative Medicine, 16 (1),
pp.44-53. Link to Abstract
Porzio, G et al, (2013) Integrating oncology and
palliative home care in Italy: the experience of the
"L'Aquila per la Vita" Home Care Unit. Tumori, 99
(2), pp.225-228. Link to Abstract
Rocque, GB et al, (2013) Palliative care reduces
morbidity and mortality in cancer. Nature Review
Clinical Oncology, 10 (2), pp.80-89. Link to Abstract
Singh, G et al, (2013) Evaluation of the role and
cost-effectiveness of end-of-life orthopaedic
interventions in cancer patients with skeletal
metastases to the hip. Journal of Palliative Care, 29
(2), pp.83-90. Link to Abstract
Torgerson, S et al, (2013) Supportive care of the
patient with advanced pancreatic cancer.
Oncology (Williston Park, N.Y.), 27 (3), pp.183-190.
Waldman, E et al, (2013) Palliative care for
children with cancer. Nature Review Clinical
Oncology, 10 (2), pp.100-107. Link to Abstract
Yoong, J et al, (2013) Early Palliative Care in
Advanced Lung Cancer: A Qualitative Study.
JAMA Internal Medicine, 173 (4) pp.1-8.
Palliative Care in ITU
Grossman, S, (2013) Development of the Palliative
Care of Dying Critically Ill Patients Algorithm:
Implications for Critical Care Nurses. Journal of
Hospice & Palliative Nursing, 15 (6), pp.355-359
Ryan, L et al, (2013) Death and Dying in Intensive
Care: Emotional Labour of Nurses. End of Life
Journal, 3 (2), pp.1-9. Link to Full Text
This article explores the emotional labour of ICU
nurses when caring for dying patients and their
relatives/loved ones, including the difficulty nurses
experience when managing the transition from
curative care to EoLC. It will discuss the emotional
and grief reactions experienced by ICU nurses,
before considering the education and support nurses
need in order to prepare them better to provide
high-quality EoLC.
Truog, RD, (2013) Palliative care in the ICU: lots of
questions, few answers*. Critical Care Medicine, 41
(6), pp.1568-1569. Link to Abstract
Pathways & Models of Care
Arie, S, (2013) Inquiry launched into newspaper
story about babies on "death pathway". BMJ, 346
(7897), f1273 pp. Link to Full Text
Bischoff, KE et al, (2013) Advance care planning
and the quality of end-of-life care in older adults.
Journal of the American Geriatrics Society, 61 (2),
pp.209-214. Link to Abstract
Chan, CWH et al (2014) The evaluation of a
palliative care programme for people suffering
from life-limiting diseases. Journal of Clinical
Nursing, 23 (1&2), pp. 113-123. Link to Abstract
Chinthapalli, K, (2013) The Liverpool Care
Pathway: what do specialists think? BMJ, 346
(7897), pp.1-4. f1184 Link to Full Text
Crawford, GB et al, (2013) A patient-centred model
of care incorporating a palliative approach: A
framework to meet the needs of people with
advanced COPD? Progress in Palliative Care, 21 (5),
pp.286-294. Link to Abstract
Kumar, S, (2013) Models of delivering palliative
and end-of-life care in India. Current Opinion in
Supportive and Palliative Care, 7 (2), pp.216-222
Mayland, CR et al, (2013) Does the 'Liverpool Care
Pathway' facilitate an improvement in quality of
care for dying cancer patients? British Journal of
Cancer, 108 (10), pp.1942-1948. Link to Abstract
Morrison, RS, (2013) Models of palliative care
delivery in the United States. Current Opinion in
Supportive and Palliative Care, 7 (2), pp.201-206
Mwangi-Powell, FN et al, (2013) Models of
delivering palliative and end-of-life care in sub-
Saharan Africa: a narrative review of the evidence.
Current Opinion in Supportive and Palliative Care, 7
(2), pp.223-228 Link to Abstract
Parker, MJ, (2013) We need an alternative to the
Liverpool care pathway for patients who might
recover. BMJ, 346, pp.f3702. Link to Full Text
Rhee, JJ et al, (2013) Why Are Advance Care
Planning Decisions Not Implemented? Insights
from Interviews with Australian General
Practitioners. Journal of Palliative Medicine, 16 (10),
pp.1197-1204. Link to Abstract
Riley, J et al, (2013) Coordinate My Care: A clinical
approach underpinned by an electronic solution.
Progress in Palliative Care, 21 (4), pp.214-219.
Vermandere, M et al, (2013) Implementation of the
ars moriendi model in palliative home care: A
pilot study. Progress in Palliative Care, 21 (5),
pp.278-285. Link to Abstract
Watts, T, (2013) The media critique of the
Liverpool Care Pathway: some implications for
nursing education. International Journal of Palliative
Nursing, 19 (6), pp.275-280. Link to Abstract
Wee, B, (2013) Models of delivering palliative and
end-of-life care in the UK. Current Opinion in
Supportive and Palliative Care, 7 (2), pp.195-200
The development of palliative and end-of-life care in the UK has been shaped by history and circumstances within and outside palliative care itself. The main focus of this review is to describe adult palliative care services in England, although much of the historical developments apply across the whole of the UK, and some of the later developments affect children's services as well.
Principles of Drug Use
Clemens, KE et al, (2013) Pharmacological
treatment of constipation in palliative care.
Current Opinion in Supportive and Palliative Care, 7
(2), pp.183-191 Link to Abstract
Hawley, P et al, (2013) Continuing methadone for
pain in palliative care. Pain Research &
Management: the Journal of the Canadian Pain
Society = journal de la societe canadienne pour le
traitement de la douleur, 18 (2), pp.83-86.
Landon, AS, (2013) Changing opioid legislation to
improve specialist palliative care in Romania.
Progress in Palliative Care, 21 (4), pp.220-223.
Maurer, MA et al, (2013) Examining Influences on
the Availability of and Access to Opioids for Pain
Management and Palliative Care. Journal of Pain
and Palliative Care Pharmacotherapy, 27 (3), pp.255-
260. Link to Abstract
Prommer, E, (2013) Anticholinergics in Palliative
Medicine: An Update. American Journal of Hospice
and Palliative Medicine, 30 (5), pp.490-498.
Tsukuura, H et al, (2013) Opioid Use in End-of-Life
Care in Patients With Interstitial Pneumonia
Associated With Respiratory Worsening. Journal
of Pain and Palliative Care Pharmacotherapy, 27 (3),
pp.214-219. Link to Abstract
Quality of Care
Catania, G et al, (2013) Does quality of life
assessment in palliative care look like a complex
screening program? Health and Quality of Life
Outcomes, 11, pp.7. Link to Abstract
Claessen, SJ et al, (2013) Measuring relatives'
perspectives on the quality of palliative care: the
Consumer Quality Index Palliative Care. Journal of
Pain and Symptom Management, 45 (5), pp.875-884.
De Roo, ML et al, (2013) Quality Indicators for
Palliative Care: Update of a Systematic Review.
Journal of Pain and Symptom Management, 46 (4),
pp.556-572. Link to Abstract
Lee, J et al, (2013) Improving the Quality of End-
of-Life Care in Long-Term Care Institutions.
Journal of Palliative Medicine, 16 (10), pp.1268-1274.
Leemans, K et al, (2013) Towards a standardized
method of developing quality indicators for
palliative care: protocol of the Quality indicators
for Palliative Care (Q-PAC) study. BMC Palliative
Care, 12, pp.6. Link to Abstract Link to Full Text
Lundberg, T et al, (2013) The perspectives of
bereaved family members on their experiences of
support in palliative care. International Journal of
Palliative Nursing, 19 (6), pp.282-288.
Raijmakers, NJ et al, (2013) Bereaved relatives'
perspectives of the patient's oral intake towards
the end of life: a qualitative study. Palliative
Medicine, 27 (7), pp.665-672. Link to Abstract
Research in Palliative Care
Lynch, T et al, (2013) Learning from challenges in
the recruitment of patients with advanced cancer
from hospice day care. Progress in Palliative Care,
21 (5), pp.265-271. Link to Abstract
McIlfatrick, SJ et al, (2013) Palliative care research
on the island of Ireland over the last decade: a
systematic review and thematic analysis of peer
reviewed publications. BMC Palliative Care, 12 (1),
pp.33. Link to Abstract Link to Full Text
Payne, S, (2013) Recruitment into palliative care
research studies: a common challenge. Progress
in Palliative Care, 21 (5), pp.263-264.
Stone, PC et al, (2013) Factors affecting
recruitment to an observational multicentre
palliative care study. BMJ Supportive & Palliative
Care, 3 (3), pp.318-323. Link to Full Text
Spiritual, Ethnic & Cultural Care
Asgeirsdottir, GH et al, (2013) "To Cherish Each
Day as it Comes": a qualitative study of
spirituality among persons receiving palliative
care. Supportive Care in Cancer, 21 (5), pp. 1445-
1451 Link to Abstract
Bodek, H, (2013) Facilitating the provision of
quality spiritual care in palliative care. Omega, 67
(1-2), pp.37-41. Link to Abstract
Callahan, AM, (2013) A Relational Model for
Spiritually-Sensitive Hospice Care. Journal of
Social Work in End-Of-Life & Palliative Care, 9 (2-3),
pp.158-179. Link to Abstract
Campbell, CL et al, (2013) Racial/Ethnic
Perspectives on the Quality of Hospice Care.
American Journal of Hospice and Palliative Medicine,
30 (4), pp.347-353. Link to Abstract
Dein, S et al, (2013) Theodicy and End-of-Life Care.
Journal of Social Work in End-Of-Life & Palliative
Care, 9 (2-3), pp.191-208. Link to Abstract
Delgado-Guay, MO et al, (2013) Spirituality,
Religiosity, and Spiritual Pain Among Caregivers
of Patients With Advanced Cancer. American
Journal of Hospice and Palliative Medicine, 30 (5),
pp.455-461. Link to Abstract
Douglas, SL et al, (2013) The impact of patient
quality of life and spirituality upon caregiver
depression for those with advanced cancer.
Palliative & Supportive Care, 11 (05), pp.389-396.
Frearson, S et al, (2013) End-of-Life Care for the
British Asian Hindu Community: Preferences and
Solutions. End of Life Journal, 3 (3), pp. 1-8
Galchutt, P, (2013) A palliative care specific
spiritual assessment: how this story evolved.
Omega, 67 (1-2), pp.79-85. Link to Abstract
Harford, JB et al, (2013) The need for more and
better palliative care for Muslim patients. Palliative
Support Care, 11, pp.1-4. Link to Abstract
Hess, D, (2013) Faith Healing and the Palliative
Care Team. Journal of Social Work in End-Of-Life &
Palliative Care, 9 (2-3), pp.180-190. Link to Abstract
Liechty, D, (2013) Sacred Content, Secular
Context: A Generative Theory of Religion and
Spirituality for Social Work. Journal of Social Work
in End-Of-Life & Palliative Care, 9 (2-3), pp.123-143.
Markham, KC, (2013) Improving incidence of
referrals for psychosocial and spiritual
transdisciplinary care in a palliative care service:
focus on brain death. Omega, 67 (1-2), pp.155-160
McCann, CJ et al, (2013) Dying other, dying self:
Creating culture and meaning in palliative
healthcare. Palliative & Supportive Care, 11 (04),
pp.289-293. Link to Abstract
McCormick, AJ, (2013) Buddhist Ethics and End-
of-Life Care Decisions. Journal of Social Work in
End-Of-Life & Palliative Care, 9 (2-3), pp.209-225.
Nelson-Becker, H, (2013) Spirituality in End-of-Life
and Palliative Care: What Matters? Journal of
Social Work in End-Of-Life & Palliative Care, 9 (2-3),
pp.112-116. Link to Abstract
Nichols, SW, (2013) Examining the impact of
spiritual care in long-term care. Omega, 67 (1-2),
pp.175-184. Link to Abstract
Penman, J et al, (2013) The relational model of
spiritual engagement depicted by palliative care
clients and caregivers. International Journal of
Nursing Practice, 19, pp.39-46. Link to Abstract
Peteet, JR et al, (2013) Spirituality and religion in
oncology. CA: a Cancer Journal for Clinicians, 63
(4), pp.280-289. Link to Abstract
Piotrowski, LF, (2013) Advocating and educating
for spiritual screening assessment and referrals
to chaplains. Omega, 67 (1-2), pp.185-192.
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exploration of spiritual care expertise. Journal of
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Thanatos: Spirituality and Ethics at the End of
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(3), pp.447-451. Link to Abstract
Taylor, EJ et al, (2013) Hospice Patient and Family
Carer Perspectives on Nurse Spiritual
Assessment. Journal of Hospice & Palliative Nursing,
15 (6), pp.347-354 Link to Abstract
Vermandere, M et al, (2013) Outcome Measures of
Spiritual Care in Palliative Home Care: A
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Making Spiritual Meanings in Bereavement.
Journal of Social Work in End-Of-Life & Palliative
Care, 9 (2-3), pp.144-157. Link to Abstract
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advance directives in an inpatient palliative care
consultation service. Palliative Support Care, 11,
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Symptom Management
Booth, S, (2013) Cambridge Breathlessness
Intervention Service (CBIS). Progress in Palliative
Care, 21 (4), pp.224-228. Link to Abstract
Clement, PM et al, (2013) Pain management in
palliative cancer patients: a prospective
observational study on the use of high dosages
of transdermal buprenorphine. Acta Clinical
Belgica, 68 (2), pp.87-91. Link to Abstract
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sedation', and the importance of the intention-
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Bioethics, 27 (1), pp.1-11. Link to Abstract
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subcutaneous access for palliative care patients.
British Journal of Nursing (Mark Allen Publishing), 23
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of pain in palliative care in Portugal. Supportive
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Kang, JH et al, (2013) Changes in Symptom
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Supportive Care in Cancer, 21 (7), pp. 1853-1859
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dry mouth in palliative care patients: a protocol
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Palliative Care, 12 (1), pp.39. Link to Abstract
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mediastinal tracheostomy. The Annals of Thoracic
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Yao, Y et al, (2013) Current state of pain care for
hospitalized patients at end of life. American
Journal of Hospital Palliative Care, 30 (2), pp.128-
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Choices for the Treatment of Pain in the Terminal
Oncologic Patient Before and During Hospice
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15 (6), pp.340-346 Link to Abstract
Terminal Phase
Albers, G et al, (2013) Personal Dignity in the
Terminally Ill from the Perspective of Caregivers:
A Survey among Trained Volunteers and
Physicians. Journal of Palliative Medicine, 16 (9),
pp.1108-1114. Link to Abstract
Albrecht, JS et al, (2013) A Nationwide Analysis of
Antibiotic Use in Hospice Care in the Final Week
of Life. Journal of Pain and Symptom Management,
46 (4), pp.483-490. Link to Abstract
Campbell, ML et al, (2013) Death Rattle Is Not
Associated with Patient Respiratory Distress: Is
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eating and drinking at the end of life - a
'systematic search and review' giving insight into
an option of hastening death in capacitated
adults at the end of life. BMC Palliative Care, 13 (1),
pp.1. Link to Abstract Link to Full Text
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Prevalence of Signs of Impending Death and
Symptoms in the Last 2 Weeks of Life. American
Journal of Hospice and Palliative Medicine, 30 (6),
pp.601-616. Link to Abstract
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Brain-Dead Patients: A 10-Year Experience.
American Journal of Hospice and Palliative Medicine,
30 (5), pp.413-418. Link to Abstract
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Unconsciousness at the End of Life: Findings
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Volunteers
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Motivations of British Hospice Volunteers.
American Journal of Hospice and Palliative Medicine,
30 (6), pp.579-586. Link to Abstract
Claxton-Oldfield, S et al, (2013) Holding on to What
You Have Got: Keeping Hospice Palliative Care
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Hospice and Palliative Medicine, 30 (5), pp.467-472.
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The following sources have been searched for evidence published in the previous three months
- Specialist Palliative Care Journals
- Department of Health
- BMJ
- BMJ Evidence Updates
- BMJ Specialities Palliative Care
- Cochrane Library
- JAMA
- Kings Fund
- Lancet
- Leadership Alliance for Care of the Dying Patient
- National Council for Palliative Care
- New England Journal of Medicine
- NHS England
- NHS Scotland
- NHS Institute for Innovation and Improvement
- NICE Evidence
- Scottish Partnership for Palliative Care
Please contact the editor for further information.
